Kickas.org Forums Ankylosing Spondylitis General Discussion #1 AS Web Support Group refusing to adjust your diet - ur soft in the head

My last comment...Please listen to the moderators and the administrators who run this forum. They deserve our respect.
If they ever ask me to let something drop, it will be dropped so quick and hard that it will shatter.

I realize I don't have to read this but I caught myself doing it this morning. I know it helps you. I know Remicade helps Lisa. I know some are helped by Humira. Some by Enbrel. I am thrilled for each one of you that have found what helps you.

I have tried the diet and it did not help me. I talked to my dr. and he ran the blood tests that showed that the diet won't help me. I also decided to just enjoy what I can out of life and part of that is having my family and friends over to eat.

Also, there are so many days that I do good to even get to the kitchen, much less try to figure out what we are going to eat, so it is a bowl of Cheerios - whole grain with blueberries or strawberries and call it a day. We do have one good cooked meal a day.

I wish the best for each of you and I am very happy for each of you that have found something to help you. For me, I don't tolerate the biologics, am allergic to anti-inflammatories, steroids have wrecked my body especially my intestines so just do what you can and what you have to for relief and protection for your body.

AND let's let this drop or move it to the diet forum where those who are very interested in the diet can read to their heart's content. Yes, I know I don't have to read it.

No offense to any one. I just feel we need to respect our leaders who work so hard for us to have this forum.

Blessings.
Possi

Hi, Possi:

In Your parting shot, You have made a claim:



I cannot figure out what this means, unless he decided that You do not have AS at all. Is there a blood test predicting the outcome of diet?!! I would like to know what test that is, specifically. There are plenty of tests of which I am certainly unaware.

Of course, You did not just find another doctor willing to tell You what You wanted to hear, that would border right on malpractice.

Now who gets the MALARIA award for resurrecting a long-dropped post?!!

Good Luck,
John

Well, I am not really sure but I will find out. With the Lupus, I am sure it had something to do with antibodies. My PT had suggested this diet and I told the dr. He said to let him do some blood work first. He did and called me and said that the diet would't help me. I should have known more before I said anything. I will find out.

Best to you John.
Possi

no offence taken

Thanks, Possi:

It would be nice to know. I don't remember whether Your primary diagnosis is AS or SLE, but if SLE I wonder whether it would be HLA DR2 or DR3 opposed to HLA B27; albeit not mutually exclusive.

HEALTH,
John

My primary diagnosis is SLE and then came RA and AS and all of the other stuff that follows...Sjogrens, Reynauds, Hypothyroidism, Iritis and on and on.

I will find out. I just haven't gotten it done yet. 2 dr. appts. yesterdayi and a friend in the hospital and just tired.

My PT told me to do it anyway that she thought it would help me. I did it for a while and didn't see any results but I am not sure I did long enough and the dr's thought just kind of mde it easy to quit. If I were getting results, I would have stayed with it for sure.

Be in touch when I find out.

Possi