Kickas.org Forums Ankylosing Spondylitis General Discussion #1 AS Web Support Group Sevella Fibro update

Thanks Irish

Today was better than most. The side effects were not quite as bad today.

Hope tomorrow is even better

I had another rhuemy appointment on Friday and we went through my history and current condition. My rhuemy is a great guy who really listens and really cares. He is really interested in my case and tries to do the right thing by me. He is happy that I am well informed and that I take a active role in my own health...never condesending, never judgemental. In fact when my wife brought up diet, he said alot of people benifit from a no starch diet. Alright!!! a rhuemy who is up on things and doesn't poo-poo a diet approach or is so arrogant to think he knows it all...open minded.....Isn't that all we ask for??

We decided that I should stay on Savella since it has really helped with the fibromyalgia. As far as the fatigue goes we are going to see how I do the weekend after my friday infusion to see how I do fatigue wise. He said some people will experience about 2-3 days of severe fatigue after a Remicade treatment. I start to rundown about a week before Remicade and then crash right after. We thought we should go to 7 week infusion intervals to see if I can sustain.

So bottom line......Jury still out as far as Savella helping me with fatigue as I stated before, it just might be the Remicade kicking in. I know that it has helped with radiating joint pain. I guess I will find out in the long run.


Man....this crap gets complicated...trying to find out the right meds to get you through the day, week, month.


Sorry if this post seems self indulgent....still trying to figure this stuff out.

moved post

Thanks for the info...My doctor did blood work before he started me on the titration pak. I have not had the type of pain you have described. Cold sweats and insomnia seem to be what I am dealing with now. I am also on hydrocodone 7.5/325 4 to 6 a day. Skalaxen for neck and shoulder pain.

Ibuprofin for joint pain.

Savella 100mg, day has helped with the intense radiating joint pain. I will see how it works throughout the Remicade infusion cycle.

Hope you get your pain under control soon.

It's 24/7 for me.

wonder if one could just have a liver panel blood test done periodically. i've been doing that for the muscle relaxant zanaflex, had it done today in fact. though its risk of causing liver problems is low, it can be serious. i'm assuming that other drugs that can cause liver damage are similarly monitored. i've been on the drug and monitored at least once a year since 2001, and initially was monitored 1 month, 3 months, 6 months, then 12 months out. and all has been fine.