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Joined: Nov 2008
Posts: 1,970
Captain_AS_Kicker
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OP
Captain_AS_Kicker
Joined: Nov 2008
Posts: 1,970 |
I went to see my GP this afternoon. I told him how I have terrible hip pain all morning to early afternoon. I am taking Vicodin every three hours and it really doesn't seem to touch the pain much. If I don't take Vicodin I can hardly walk. He questioned whether being on Remicade is the right answer. I told him AGAIN that it never did much for the hip pain but it is helping with the fatigue. My rhuemy also told me that it appears that it hasn't seemed to progress. I do not know what periphrial pain is caused by the AS or the Fibromyalgia.
My doctor is starting to question my diagnosis!!!
I do not want to scrap the whole thing and start over.
My doctor is going to talk with my rhuemy next week to see if they can figure out what is going on.
In the mean time I am having severe hip pain that radiates all the way down my legs.
I am frustrated with the whole thing. I am also wondering what is going on. It has also been increasingly harder to work everyday.
I can not defeat you but I will not let you win
Jeff
Degenrative disc disease 2005
AS 2008 HLA-B27-
Fibromyalgia 2010
Disability 2012
Back to work part time 2013
Enbrel, Cymbalta,Oxycodone, blah blah blah blah
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Joined: Apr 2006
Posts: 2,371
Colonel_AS_Kicker
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Colonel_AS_Kicker
Joined: Apr 2006
Posts: 2,371 |
Hi Jeff
Ask your doctor about Psoriatic Arthritis (PsA). PsA is the sister to AS. I am HLA B27+, and have been diagnosed with PsA.
I have much pain in my back, hips, up my spine to top of neck,shoulders, feet, hands, knees - heck most joints.
My Rheumy was quick to diagnose me when she seen my xrays.
You need to find a rheumy who knows the spondylitis(s)
Hugs
Gerri
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Joined: Jul 2009
Posts: 38
Member
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Member
Joined: Jul 2009
Posts: 38 |
Hi Jeff I think sortings things with the rhuemy will be much better rather then your gp talking to hom Its def the patient who can give clear idea of whats happening with them not the doctors they can only guide and help in a better way
I went to see my GP this afternoon. I told him how I have terrible hip pain all morning to early afternoon. I am taking Vicodin every three hours and it really doesn't seem to touch the pain much. If I don't take Vicodin I can hardly walk. He questioned whether being on Remicade is the right answer. I told him AGAIN that it never did much for the hip pain but it is helping with the fatigue. My rhuemy also told me that it appears that it hasn't seemed to progress. I do not know what periphrial pain is caused by the AS or the Fibromyalgia.
My doctor is starting to question my diagnosis!!!
I do not want to scrap the whole thing and start over.
My doctor is going to talk with my rhuemy next week to see if they can figure out what is going on.
In the mean time I am having severe hip pain that radiates all the way down my legs.
I am frustrated with the whole thing. I am also wondering what is going on. It has also been increasingly harder to work everyday.
Take Care
Kesav
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Joined: Jan 2008
Posts: 21,346 Likes: 2
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346 Likes: 2 |
i'd be frustrated too, so much energy to just get a dx and get treatment and to have it questioned so soon. if the drugs aren't working well enough, maybe another drug is to be considered? hope you get some relief soon, the hip surgery may be part of the solution, no?
sue
Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
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Joined: Feb 2010
Posts: 2,190
Major_AS_Kicker
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Major_AS_Kicker
Joined: Feb 2010
Posts: 2,190 |
You know, your hip pain could be totally unrelated to your other problems. I have OA and AS. The two conditions cause pain in different areas. Why is it that once we get a Dx of one thing, doctors and ourselves want to lump all our symptoms together? If something doesn't fit the list of symptoms we are supposed to have, the doctors are confused.
Your hip pain could be caused by something orthopedic that has nothing to do with AS or Fibro.
I hope you find some answers.
Donna
Donna
Cherish your yesterdays,
Dream your tomorrows,
But live your todays.
Do the very best you can
leave the rest to God.
God Bless,
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Joined: Nov 2007
Posts: 6,269
Addicted_to_AS_Kickin
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Addicted_to_AS_Kickin
Joined: Nov 2007
Posts: 6,269 |
Hi jeff...wow, what a roller-coaster you're on...I'm so sorry my friend...I hope you get this resolved soon, until then, big hugs & much love... 
Age 7- Kidney Necrosis Age 11-Bursitis Age 14-Costo Age 17-Psoriasis Age 32-Thoracic Outlet Syndrome Age 33-Sacroilitis Age 35-Interstitial Cystitis Age 40-AS Age 44-Fibro Age 44-PsA Age 45-MS Age 46-Sjogrens Age 46-Raynauds Age 47-PF  
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Joined: Nov 2009
Posts: 194
First_Degree_AS_Kicker
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First_Degree_AS_Kicker
Joined: Nov 2009
Posts: 194 |
Wishing you a smooth and quick resolution.
They really should just add frustration to the symptom list of all our 'members' conditions, don't you think? It seems to go hand in hand with AS, RA, Fibro, PsA....
Really hoping your frustration is short lived!
Tracey
"You can discover more about a person in an hour of play than in a year of conversation" - Plato
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Joined: Feb 2010
Posts: 188
First_Degree_AS_Kicker
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First_Degree_AS_Kicker
Joined: Feb 2010
Posts: 188 |
Oh Jeff,
So Sorry to hear of your new set back. Starting from square one is not good news to hear. Much prefer progress.
Prayers,
Jeanne
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Joined: Jan 2009
Posts: 4,501 Likes: 1
Supreme_AS_Kicker
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Supreme_AS_Kicker
Joined: Jan 2009
Posts: 4,501 Likes: 1 |
Hope they can come to some conclusion. Sorry that you are in so much pain.
DX: Psoriatic Arthritis, Osteoporosis, Psoriasis
Meds: MTX since Oct 2009, 15mg/week. Cimzia-restarted after 2 yrs away.
Epidural Steroid Injections x8; Lumbar Radiofreq Ablation x2
SIJ Steroid Injection x3; Bilateral Radiofreq Ablation SIJ x9
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Joined: Jan 2006
Posts: 3,016
Imperial_AS_Kicker
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Imperial_AS_Kicker
Joined: Jan 2006
Posts: 3,016 |
Oh Jeffrey, this is awful, I can just immagine how frustrated you are. If your Rheumy diagnosed you with AS why would your GP question him, your Rheumy is the specialist after all. I have been quickly loosing my faith in the medical profession. I'm so sorry you are going through this.
Cindy
" That which does not kill me only makes me stronger"
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