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Joined: Jan 2006
Posts: 3,016
Imperial_AS_Kicker
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OP
Imperial_AS_Kicker
Joined: Jan 2006
Posts: 3,016 |
Thanks Jan, As with everything else, it will take some time to rule it out or diagnose.
Cindy
" That which does not kill me only makes me stronger"
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Joined: Jan 2006
Posts: 3,016
Imperial_AS_Kicker
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OP
Imperial_AS_Kicker
Joined: Jan 2006
Posts: 3,016 |
Thanks for the hug Donette, I'm hoping this is a false alarm. But the symptoms are pretty clear cut.
Cindy
" That which does not kill me only makes me stronger"
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Joined: Jan 2006
Posts: 3,016
Imperial_AS_Kicker
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OP
Imperial_AS_Kicker
Joined: Jan 2006
Posts: 3,016 |
Kevin thanks for the hug. It's going to be a while to get this figured out. Living 200 miles from the Neurologist, it will take a while to get the ball rolling for an appointment.
Cindy
" That which does not kill me only makes me stronger"
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Joined: Jan 2006
Posts: 3,016
Imperial_AS_Kicker
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OP
Imperial_AS_Kicker
Joined: Jan 2006
Posts: 3,016 |
Rumbel, thanks for the hug, always appreciated. Will let you all know when I have answers.
Cindy
" That which does not kill me only makes me stronger"
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Joined: Jan 2006
Posts: 3,016
Imperial_AS_Kicker
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OP
Imperial_AS_Kicker
Joined: Jan 2006
Posts: 3,016 |
Rumbel, thanks for the hug, always appreciated. Will let you all know when I have answers.
Cindy
" That which does not kill me only makes me stronger"
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Joined: Jan 2006
Posts: 3,016
Imperial_AS_Kicker
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OP
Imperial_AS_Kicker
Joined: Jan 2006
Posts: 3,016 |
Okay so I just submitted the same post twice, what an idiot
" That which does not kill me only makes me stronger"
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Joined: Jan 2006
Posts: 3,016
Imperial_AS_Kicker
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OP
Imperial_AS_Kicker
Joined: Jan 2006
Posts: 3,016 |
Hey Chris, I went through somes tests 30 years ago and the neurologist mentioned it "could" be MS but I never followed through when some of my symptoms calmed down, long story.
I've been reading through some research today that may link AS and MS, interresting.
Cindy
" That which does not kill me only makes me stronger"
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Joined: Jan 2006
Posts: 3,016
Imperial_AS_Kicker
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OP
Imperial_AS_Kicker
Joined: Jan 2006
Posts: 3,016 |
Thanks Kat, I would really like to see how many hear have both or suspect both. I never followed through with the Neurologist 30 years ago after some of my symptoms calmed down, I was busy raising kids and had gone through years of docs and misdiagnosis I just became frustrated back then with the whole medical community.
Cindy
" That which does not kill me only makes me stronger"
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Joined: Jan 2006
Posts: 3,016
Imperial_AS_Kicker
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OP
Imperial_AS_Kicker
Joined: Jan 2006
Posts: 3,016 |
Hi Lon, I'm hoping Michelle chimes in here to update me on her situation. I immagine she is really busy with the oil spill right now though.
Cindy
" That which does not kill me only makes me stronger"
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Joined: Jan 2006
Posts: 3,016
Imperial_AS_Kicker
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OP
Imperial_AS_Kicker
Joined: Jan 2006
Posts: 3,016 |
Hi Gerry, what is porphyria? So when do you find out for sure between the MS or Lupus?
Cindy
" That which does not kill me only makes me stronger"
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