Kickas.org Forums Ankylosing Spondylitis General Discussion #1 AS Web Support Group Dr. said I had a big bu_ _!!!

Sunny,
Hi. No I am not positive in testing, only one test. But I do not beleive that keeps me form having it. some have to be tested 3-4 times before it shows.
With Fibro, I sometimes complain that my muscles hurt to stinknig much, and the Rheumy forgest aobut AS. I know I do have a wheat allergy, milk also.
I think we should stretch out as much as we can, wihtout tearing tissue. But the pain often feels like the muscle is being torn off the bone...
Keep reading, lets compare notes.
Years ago the DragonSlayer told me not to be tlaked out of the AS diagnosis, because it covers a plethera of symptoms.
Nice to get acauinted, stay in touch.
"white tongue"... I have waht is called a hot tongue. Any thing real cold, just burns the daylkihgts, also sometimes peppers... what do you mean??

true about testing, i was just curious. muscle ripping from bone? it is constantly uncofortable. if my muscles would relax id prob feel 85% better. ive tried muscle relaxers but they lose effectiveness quickly. after a few days i wanna take more. dragonslayer has a heck of a lot of knowledge on AS and things related, nutrition, etc. pretty incredible. as for my tongue...its a white coating [thrush] that does not come off. it has decreased a little bit recently so i think thats a good thing? i will do more reading and be in touch. good to meet you too. :]

Your only 61? You are still a baby. I will be 70 in August and I am NOT old. Don't let anyone call you old. My Rheumy said that 60 is the new 30 and people are living much longer now. We should stay young longer.

Donna

Sunny,
This morning, I could not get my first sock on. have fused in 3 vertebrae, so it is not that, but I had to pull myself forward to be able to reach my feet.
Fusing causes pain, but this muscle stuff is really nasty..
Any discoveries? Some foods make people stiff and sore. I usually swell first in the belly and then get the muscle tension.... Yesterday, i was on a walk. I could barley go up the hill by the house. Then I decided to die trying, so I double my pace and in a fe w minutes felt much better, just because I walked faster. But as soon as went in the house, sat for a bit, I was terrible tight again....

Let me know what is going on ok?
Lon

Donna,
My tomatoes are just sitting in the cold soil out here.
I have thought of putting up a frame and heating them a bit.
I do not react to tomatoes so I want as many as I can get!

I quit the muscle relaxers cause they were so much worse as they wore off in 3 hours....
Lon

hi lon
i admire the fact you can reach your feet :] i havent putmy own socks on in 3 yrs. i use the tv remote to scratch my knee.
yes i think ive got the food thing nearly all figured out in terms of what bothers me the most and why. its random though, ex: 'real' ice cream -pain in l. ankle, overcooked veggies -pain in r. base pinky knuckle, r. shoulder and aches everywhere else. i wont bore you with all that lol. are you on NSD? im working on getting Ldn have you tried it? my short term goal is to feel good enough to go to massage therapy [instead of massage she mainly stretches me and does diff things to loosen muscles and tendons. she used to work w/ athletes] 2-3 times a week. it was helping me before but i just kept getting more inflammation. dont think it was from therapy but just the nature of AS. long term goal is to be pain free of course :]

Sunny,
Everything bothers me.
I have not fasted for a while again, so that is something I need to do soon. I can finally eat apples, for years they gave me such a belly ache..
So who puts on your socks.
Or do ya not take them off??????

Lon

haha lon .. my boyfriend puts my socks on and does a load of other things too. i thank him every time cuz im greatful and 'thank you' never gets old :]

ive never fasted, im too skinny and scared too. i have found some basic things that i tolerate well and try to stick with that till i feel better. ill be posting about the improvements once i get to week 6 on Nsd. on week 5 now. its difficult b/c i also have oral allergy syndrome [oas] so i cant eat fresh fruits and veg except white or yellow onion. the amount of time i need to cook vegs to tolerate them makes them starchy or sugary so that double sucks! heck with cake... it wpuld be nice to eat a salad again with fresh vegs all over it. its been 12 yrs blah!

youve gotta be able to eat something!?