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Joined: Jan 2006
Posts: 3,016
manatee Offline OP
Imperial_AS_Kicker
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Imperial_AS_Kicker
Joined: Jan 2006
Posts: 3,016
Well gang I got back from my trip south to see my docs. I'm exhausted. I drove the 200 miles down saw my Neurologist then it was off to the Orthopedics for 2 surgical consults and drove home the 200 miles and "crashed" for a couple days. My Neurologist does indeed think that I have MS but will have the MRI next week to confirm. There is still a small chance that it could be something else so I will hold on to that for now. My Orthopedic surgeon officially handed me off to another surgeon who will be doing the surgery on my shoulder next month. I'm an emotional wreck and can't seem to get on a schedule with my shrink. Done nothing but cry for the last 2 days that I've been home after setting up yet another surgery I don't want to have. I'm trying to be my stedfast strong self but it just isn't there anymore. Oh well, such is life. I won't be on for a day or two, have to drive back down again today and will be back tomorrow. Hope you all have a great weekend.
Cindy


" That which does not kill me only makes me stronger"
Joined: Jun 2006
Posts: 126
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Journeyman_AS_Kicker
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Journeyman_AS_Kicker
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Joined: Jun 2006
Posts: 126
Cindy, I am so sorry you are going through so many major things all at once. You have had so much to deal with and it is no wonder you have ended up feeling a wreck after that trip - the trip alone would do most of us in but to also face the strong possiblity of MS and having to schedule another shoulder surgery (which you will be dreading after having them before), well.....you have got to be kind to yourself and not expect your mind or body to just shrug it all off. You are a great support to everyone here, I know when I have needed support you have been there for me so I hope I can do the same in return. I know many many others will be doing that too for you. Take good care, remember to just let yourself go through the exhaustion, anger, fear and all the other emotions as well as the pain and once you are recovered from the trip it won't all seem quite so insurmountable..
Di xxx hugss

Joined: Nov 2007
Posts: 6,269
Addicted_to_AS_Kickin
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Addicted_to_AS_Kickin
Joined: Nov 2007
Posts: 6,269
Cindy, I'm so sorry that you're having to deal with this...I certainly hope that you won't have to go through more surgeries, you've been through so much already, just know that you're in my heart and prayers...big hugs & much love...xxooxx


Age 7- Kidney Necrosis
Age 11-Bursitis
Age 14-Costo
Age 17-Psoriasis
Age 32-Thoracic Outlet Syndrome
Age 33-Sacroilitis
Age 35-Interstitial Cystitis
Age 40-AS
Age 44-Fibro
Age 44-PsA
Age 45-MS
Age 46-Sjogrens
Age 46-Raynauds
Age 47-PF
Joined: Dec 2008
Posts: 5,231
Offline
Joined: Dec 2008
Posts: 5,231
Wow, Cindy! You are amazing the way you are coping with all this. No wonder you're reduced to tears. I can't believe that you are still managing to do all this driving as well.

I'll hang on to that hope with you that you don't have MS. And send you lots of hugs and all the extra strength that you can muster.


Wendy

Rheumatoid Arthritis
Methotrexate, Celebrex, Plaquenil
Joined: Jan 2008
Posts: 21,346
Likes: 2
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346
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cindy,

know that our thoughts are with you heart



sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
Joined: Sep 2008
Posts: 955
Superior_AS_Kicker
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Superior_AS_Kicker
Joined: Sep 2008
Posts: 955
What a rough time... hugss Fingers crossed that it is something else and not MS. Thinking of you.


"Traveler, there is no road, you make your path as you walk." - Antonio Machado
Joined: Oct 2007
Posts: 1,731
Likes: 1
naj Offline
Diamond_AS_Kicker
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Diamond_AS_Kicker
Joined: Oct 2007
Posts: 1,731
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You are in my thoughts, Cindy, and I'd be crying too! Hopefully you will see your therapist to get some support. Meanwhile, keep us posted here. Best wishes,
Jan


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Jan

Joined: May 2010
Posts: 1,279
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Copper_AS_Kicker
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Copper_AS_Kicker
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Joined: May 2010
Posts: 1,279
i feel terrible for you. i would be a mess too. watch a funny movie. i know this seems like a lame suggestion but at least it would get your mind off things for a bit. ill pray for you. hang in there... you ARE strong! :]


AS & Fibro. NSD + no sugar
Joined: Mar 2008
Posts: 215
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Second_Degree_AS_Kicker
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Second_Degree_AS_Kicker
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Joined: Mar 2008
Posts: 215
This is awfully tough for you Cindy. Be kind to yourself over the next few days and fingers crossed for some good news. Sending you positive vibes across the oceans.
Felicity

Joined: Sep 2009
Posts: 1,236
Copper_AS_Kicker
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Copper_AS_Kicker
Joined: Sep 2009
Posts: 1,236
Oh Cindy, what awful news. Makes perfect sense to come home and crash for a while after a trip like that.
hugss


Micki
Mom to 9
Dx'ed Ocular Herpes, Sept. '08
Dx'ed AS May '09, suffering on and off since 1979
Dx'ed Non-Hodgkins Lymphoma May '08, relapse Oct '11
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