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Joined: Apr 2009
Posts: 1,576
Gold_AS_Kicker
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OP
Gold_AS_Kicker
Joined: Apr 2009
Posts: 1,576 |
Hi all,
I just wanted to give an update.
I've been going to Physical Therapy for 3 weeks now. It is more painful than natural childbirth, but it IS working. They are able to do "manual" therapy which basically means pushing on spots on your body that you didn't even know hurt, but are now painfully aware of every time you look at your new bruise. But after they loosen up your "fascia" or joint capsule (I have no idea what these terms mean)...your body actually works better. They have brought back nearly full range of motion in my shoulders. Amazing. Trust me, or I wouldn't keep going back. Now they also have me on an exercise program for strengthening. It is working. I can drive again. Wild. I wish I would have done this long ago. Some stuff is beyond help, IE: my right wrist is fused, which sucks. But hey, what can ya do? It's spilt milk at this point.
My PT Doc also consulted with a nutritionist who advised me that in addition to avoiding starch, to remove Dairy, Sugar, and Fruit. And WOW, in less than 24 hours I saw a HUGE improvement.
I am taking a little celebrex on and off so I can feel extra good for special occasions like today, took 8 cub scouts to day camp. Woo hoo. Prior to NSD, celebrex had no benefit.
Bottom line is I haven't felt this good, since I started feeling bad! lol
Diet wise, I eat fruit sparingly, in small quantities, and not very often. I eat dairy very rarely, had some mozzarela tonight at a friends house.....stomach is churning noisily. I eat sugar free chocolate and other s/f candies. I'm not so "crazed" for lack of food. I'm losing weight, which for me is a good thing. I am able to walk, and do other exercise, which feels amazing.
I feel very blessed to have found KA and all of you. Thanks for holding my hand in my darkest hours.
-Donette
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Joined: Jan 2008
Posts: 21,346 Likes: 2
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346 Likes: 2 |
first off this all sounds like fantastic news! congrats on all of this.  as for the fascia, it is that clear membrane you see on raw chicken between the meat (muscle) and skin. here's a wiki defn. : http://en.wikipedia.org/wiki/Fascia
sue
Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
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Joined: May 2010
Posts: 1,279
Copper_AS_Kicker
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Copper_AS_Kicker
Joined: May 2010
Posts: 1,279 |
YAY for you girl!!! :] im glad you found a good combo of remedies thats helping. look forward to hearing more good news from you :]]]
AS & Fibro. NSD + no sugar
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Joined: Apr 2009
Posts: 1,595
Gold_AS_Kicker
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Gold_AS_Kicker
Joined: Apr 2009
Posts: 1,595 |
 Yay for physios!!! Physios are Fabulous!!! (Unfortunately they are not magicians...  ) That's great news Donette - as with most things - it's a combo that works best - trick is figuring out *which* combo...  Tired Louise - who is now taking off her "physio" hat to drive home and put on my "Mum" hat...
Louise Happy to be a physio by day, not happy to be a Spondy 24/7! 
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Joined: May 2010
Posts: 1,279
Copper_AS_Kicker
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Copper_AS_Kicker
Joined: May 2010
Posts: 1,279 |
is a physio the same thing as physical therapist?
AS & Fibro. NSD + no sugar
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Joined: Jan 2008
Posts: 21,346 Likes: 2
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346 Likes: 2 |
yes sunnypower  and i agree too, yay for PT!
sue
Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
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Joined: Jan 2010
Posts: 839
Ninja_AS_Kicker
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Ninja_AS_Kicker
Joined: Jan 2010
Posts: 839 |
 It's so good to hear good news!
34. Some rheumys say AS stage 1-2 some others say USpA Also UC - rectocolitis. UC curently in remission since feb 2011. AS/USpA remission march-aug 2011. Flare - sept-nov 2011 (antibiotics). Remission now... Modified NSD/SCD. Cook your own ! ____________________________________________________________ Mesalazine-Salofalk 500 mg/day And the list of my medication has become verry short after some years on this diet
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Joined: Sep 2008
Posts: 955
Superior_AS_Kicker
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Superior_AS_Kicker
Joined: Sep 2008
Posts: 955 |
Physios are Fabulous!!!
(Unfortunately they are not magicians... blush ) Yet there is something magical about you, Louise....
"Traveler, there is no road, you make your path as you walk." - Antonio Machado
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Joined: Sep 2008
Posts: 955
Superior_AS_Kicker
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Superior_AS_Kicker
Joined: Sep 2008
Posts: 955 |
Wohoo! That is so wonderful to hear, Donette. Great that your PT is working with the nutritioninst, and that it is all making such a difference to you. Go Team Donette! May you continue to improve! 
"Traveler, there is no road, you make your path as you walk." - Antonio Machado
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Joined: Jan 2010
Posts: 69
Active_Member
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Active_Member
Joined: Jan 2010
Posts: 69 |
Good news Keep it up
My strenght comes from my pain!
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