banners
Kickas Main Page | Rights and Responsibilities | Donate to Kickas
Forum Statistics
Forums33
Topics44,195
Posts519,910
Members14,164
Most Online2,352
Sep 12th, 2025
Newest Members
LizardofAZ, PPM, Troy, Sarahbellum, aeropuertas
14,164 Registered Users
KickAs Team
Administrator/owner:
John (Dragonslayer)
Administrator:
Melinda (mig)
WebAdmin:
Timo (Timo)
Administrator:
Brad (wolverinefan)

Moderators:
· Tim (Dotyisle)
· Chelsea (Kiwi)
· Megan (Megan)
· Wendy (WendyR)
· John (Cheerful)
· Chris (fyrfytr187)

QR Code
If you want to use this QR code (Quick Response code) just save the image and paste it where you want. You can even print it and use it that way. Coffee cups, T-Shirts etc would all be good for the QR code.

KickAS QR Code
Previous Thread
Next Thread
Print Thread
Page 3 of 3 1 2 3
mom2many #403535 07/19/10 01:48 PM
Joined: Nov 2001
Posts: 18,187
Likes: 7
Very_Addicted_to_AS_Kickin
Offline
Very_Addicted_to_AS_Kickin
Joined: Nov 2001
Posts: 18,187
Likes: 7
Hi Micki, I think you've heard me speak about the Pain Cycle, yes? Thing is, it is a viscious cycle. The pain is definitely contributing to your fatigue and vice versa. Also, your modified activity may also be contributing. If you can bring your pain levels down, you will not only feel less fatigued and brian fogged, you will also be able to increase your activity, which will help you to sleep more soundly at night, which will help bring your pain levels down a bit more and help with the fatigue and brain fog.

Perhaps instead of trying to kill the pain altogether, try to bring the levels down to a point at which you can do a bit more and have less brain fog and fatigue. It's one step at a time. The cycle can be broken, but it takes some work and practice.

I hope you get some relief soon, Micki.

Warm hugs,


Kat

A life lived in fear is a life half lived.
"Strictly Ballroom"

Inanna #403536 07/19/10 02:12 PM
Joined: May 2010
Posts: 31
P
Member
Offline
Member
P
Joined: May 2010
Posts: 31
I am on daily pain meds. I take 10mg of oxycodone every 6 hrs and 15mg of morphine every 6 hrs...i'm not sure if it is helping anymore...i seem to be in so much pain, i can't function. also i'm on Humira every other week...which also hasn't helped...YET. i'm not giving up hope on it...
i seem to be in a horrible flare since saturday...i can't take much more of this pain...


pink :)))
"Give me strength, Give me courage"
Inanna #403553 07/19/10 04:09 PM
Joined: Sep 2009
Posts: 1,236
Copper_AS_Kicker
OP Offline
Copper_AS_Kicker
Joined: Sep 2009
Posts: 1,236
Kat,
I definitely agree with you about the viscious cycle. Balance is key and so difficult to achieve.

I don't expect to kill the pain completely. I'm just tired of doing stuff and feeling pain and then needing to cry over the pain or sit down, or both. 20 minutes on my feet and my legs go numb. 30 minutes and my back starts spazzing.


Micki
Mom to 9
Dx'ed Ocular Herpes, Sept. '08
Dx'ed AS May '09, suffering on and off since 1979
Dx'ed Non-Hodgkins Lymphoma May '08, relapse Oct '11
pnkstar1771 #403555 07/19/10 04:11 PM
Joined: Sep 2009
Posts: 1,236
Copper_AS_Kicker
OP Offline
Copper_AS_Kicker
Joined: Sep 2009
Posts: 1,236
I'm so sorry you are feeling so bad. Can you take NSAIDs while waiting for the Humira to kick in? I hope things turn around soon.


Micki
Mom to 9
Dx'ed Ocular Herpes, Sept. '08
Dx'ed AS May '09, suffering on and off since 1979
Dx'ed Non-Hodgkins Lymphoma May '08, relapse Oct '11
mom2many #403581 07/19/10 07:12 PM
Joined: Nov 2001
Posts: 18,187
Likes: 7
Very_Addicted_to_AS_Kickin
Offline
Very_Addicted_to_AS_Kickin
Joined: Nov 2001
Posts: 18,187
Likes: 7


I just wish I could make it stop.

Warm hugs,


Kat

A life lived in fear is a life half lived.
"Strictly Ballroom"

EricaK #403586 07/19/10 07:26 PM
Joined: Jun 2010
Posts: 545
Veteran_AS_Kicker
Offline
Veteran_AS_Kicker
Joined: Jun 2010
Posts: 545
Have you tried bromelain?

It is such a powerful natural anti-inflammatory that many, many surgeons will have it added to a patient's IV drip post-op.

My youngest son is a professional snowboarder and snowboard instructor. He said he couldn't have finished the season without it.




Author: Mayan Solstice: A Novel of 2012 (http://www.createspace.com/3420054)

If you would know a man, observe how he treats a cat.-
from "The Door into Summer" (1957), chapter 1 (Robert Anson Heinlein)

Love is the condition in which the happiness of another person is essential to your own. (again, RAH)

Johninco #403591 07/19/10 08:07 PM
Joined: Nov 2001
Posts: 18,187
Likes: 7
Very_Addicted_to_AS_Kickin
Offline
Very_Addicted_to_AS_Kickin
Joined: Nov 2001
Posts: 18,187
Likes: 7
Bromelain rocks!! I eat a quarter of a pineapple and feel really well for a while. MMMMM.

Hugs,


Kat

A life lived in fear is a life half lived.
"Strictly Ballroom"

EricaK #403728 07/20/10 03:32 PM
Joined: Aug 2003
Posts: 2,717
ironchef
Offline
ironchef
Joined: Aug 2003
Posts: 2,717
aloha kids...

pain med - NARCOTICS -

constipation...if you eat a good meal at dinner time and don't take another pain pill after 7:30/8:00 pm...you'll avoid the constipation thingee./ and taking a pain med at bedtime is to my mind a waste...it takes time to be absorbed and for the med to be distributed.

one very wise about some thing doctor said, 'look, pain meds have a much harder time working when you're already bouncing off the walls...if you know 2/3pm is going to be heck; take the pill at noon and it'll be in your system when the bad stuff come on.'

i've had 'em all, T2, T3, T4, a perocet or two or three, and now i take Norco(hydrocodone 10/325)...it works i take one at about noon and another about 7pm...on bad days a third one about 4pm.

and, if i may, these are habituating. it's not the best thing to take 'em for a couple weeks like candy and then, feeling a little better, just stop for a couple days...that's a potentially easy way to end up with drug problems in addition to back problems.

and yeah, pain sucks.


Page 3 of 3 1 2 3

Link Copied to Clipboard
Who's Online Now
0 members (), 348 guests, and 296 robots.
Key: Admin, Global Mod, Mod
Recent Posts
Popular Topics(Views)
3,586,264 hmmm
1,440,860 OMG!!!!
811,388 PARTY TIME!
Powered by UBB.threads™ PHP Forum Software 7.7.5
(Release build 20201027)
Responsive Width:

PHP: 5.5.38 Page Time: 0.069s Queries: 31 (0.011s) Memory: 3.2292 MB (Peak: 3.4348 MB) Data Comp: Zlib Server Time: 2025-09-19 10:21:04 UTC
Valid HTML 5 and Valid CSS