Forums33
Topics44,195
Posts519,910
Members14,164
|
Most Online2,352 Sep 12th, 2025
|
|
Administrator/owner:
John (Dragonslayer)
Administrator:
Melinda (mig)
WebAdmin:
Timo (Timo)
Administrator:
Brad (wolverinefan)
Moderators:
· Tim (Dotyisle)
· Chelsea (Kiwi)
· Megan (Megan)
· Wendy (WendyR)
· John (Cheerful)
· Chris (fyrfytr187)
|
|
If you want to use this QR code (Quick Response code) just save the image and paste it where you want. You can even print it and use it that way. Coffee cups, T-Shirts etc would all be good for the QR code.
|
|
|
Joined: Nov 2001
Posts: 18,187 Likes: 7
Very_Addicted_to_AS_Kickin
|
Very_Addicted_to_AS_Kickin
Joined: Nov 2001
Posts: 18,187 Likes: 7 |
Hi Micki, I think you've heard me speak about the Pain Cycle, yes? Thing is, it is a viscious cycle. The pain is definitely contributing to your fatigue and vice versa. Also, your modified activity may also be contributing. If you can bring your pain levels down, you will not only feel less fatigued and brian fogged, you will also be able to increase your activity, which will help you to sleep more soundly at night, which will help bring your pain levels down a bit more and help with the fatigue and brain fog.
Perhaps instead of trying to kill the pain altogether, try to bring the levels down to a point at which you can do a bit more and have less brain fog and fatigue. It's one step at a time. The cycle can be broken, but it takes some work and practice.
I hope you get some relief soon, Micki.
Warm hugs,
Kat
A life lived in fear is a life half lived. "Strictly Ballroom"
|
|
|
|
Joined: May 2010
Posts: 31
Member
|
Member
Joined: May 2010
Posts: 31 |
I am on daily pain meds. I take 10mg of oxycodone every 6 hrs and 15mg of morphine every 6 hrs...i'm not sure if it is helping anymore...i seem to be in so much pain, i can't function. also i'm on Humira every other week...which also hasn't helped...YET. i'm not giving up hope on it... i seem to be in a horrible flare since saturday...i can't take much more of this pain...
pink :))) "Give me strength, Give me courage"
|
|
|
|
Joined: Sep 2009
Posts: 1,236
Copper_AS_Kicker
|
OP
Copper_AS_Kicker
Joined: Sep 2009
Posts: 1,236 |
Kat, I definitely agree with you about the viscious cycle. Balance is key and so difficult to achieve.
I don't expect to kill the pain completely. I'm just tired of doing stuff and feeling pain and then needing to cry over the pain or sit down, or both. 20 minutes on my feet and my legs go numb. 30 minutes and my back starts spazzing.
Micki Mom to 9 Dx'ed Ocular Herpes, Sept. '08 Dx'ed AS May '09, suffering on and off since 1979 Dx'ed Non-Hodgkins Lymphoma May '08, relapse Oct '11
|
|
|
|
Joined: Sep 2009
Posts: 1,236
Copper_AS_Kicker
|
OP
Copper_AS_Kicker
Joined: Sep 2009
Posts: 1,236 |
I'm so sorry you are feeling so bad. Can you take NSAIDs while waiting for the Humira to kick in? I hope things turn around soon.
Micki Mom to 9 Dx'ed Ocular Herpes, Sept. '08 Dx'ed AS May '09, suffering on and off since 1979 Dx'ed Non-Hodgkins Lymphoma May '08, relapse Oct '11
|
|
|
|
Joined: Nov 2001
Posts: 18,187 Likes: 7
Very_Addicted_to_AS_Kickin
|
Very_Addicted_to_AS_Kickin
Joined: Nov 2001
Posts: 18,187 Likes: 7 |
 I just wish I could make it stop. Warm hugs,
Kat
A life lived in fear is a life half lived. "Strictly Ballroom"
|
|
|
|
Joined: Jun 2010
Posts: 545
Veteran_AS_Kicker
|
Veteran_AS_Kicker
Joined: Jun 2010
Posts: 545 |
Have you tried bromelain?
It is such a powerful natural anti-inflammatory that many, many surgeons will have it added to a patient's IV drip post-op.
My youngest son is a professional snowboarder and snowboard instructor. He said he couldn't have finished the season without it.
 Author: Mayan Solstice: A Novel of 2012 ( http://www.createspace.com/3420054) If you would know a man, observe how he treats a cat.- from "The Door into Summer" (1957), chapter 1 (Robert Anson Heinlein) Love is the condition in which the happiness of another person is essential to your own. (again, RAH)
|
|
|
|
Joined: Nov 2001
Posts: 18,187 Likes: 7
Very_Addicted_to_AS_Kickin
|
Very_Addicted_to_AS_Kickin
Joined: Nov 2001
Posts: 18,187 Likes: 7 |
Bromelain rocks!! I eat a quarter of a pineapple and feel really well for a while. MMMMM.
Hugs,
Kat
A life lived in fear is a life half lived. "Strictly Ballroom"
|
|
|
|
Joined: Aug 2003
Posts: 2,717
ironchef
|
ironchef
Joined: Aug 2003
Posts: 2,717 |
aloha kids...
pain med - NARCOTICS -
constipation...if you eat a good meal at dinner time and don't take another pain pill after 7:30/8:00 pm...you'll avoid the constipation thingee./ and taking a pain med at bedtime is to my mind a waste...it takes time to be absorbed and for the med to be distributed.
one very wise about some thing doctor said, 'look, pain meds have a much harder time working when you're already bouncing off the walls...if you know 2/3pm is going to be heck; take the pill at noon and it'll be in your system when the bad stuff come on.'
i've had 'em all, T2, T3, T4, a perocet or two or three, and now i take Norco(hydrocodone 10/325)...it works i take one at about noon and another about 7pm...on bad days a third one about 4pm.
and, if i may, these are habituating. it's not the best thing to take 'em for a couple weeks like candy and then, feeling a little better, just stop for a couple days...that's a potentially easy way to end up with drug problems in addition to back problems.
and yeah, pain sucks.
|
|
|
0 members (),
350
guests, and
236
robots. |
Key:
Admin,
Global Mod,
Mod
|
|
|
|