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Joined: Jan 2008
Posts: 21,346 Likes: 2
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346 Likes: 2 |
the 6th photo in, 3rd from the end is the best i think for really seeing what the blisters look like  amazing what some things can do to us, glad you are ok otherwise (concerning reacting to enbrel that is).
sue
Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
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Joined: Sep 2008
Posts: 955
Superior_AS_Kicker
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Superior_AS_Kicker
Joined: Sep 2008
Posts: 955 |
I hope the doc can get to the bottom of it quickly, doesn't sound like that was much fun!
"Traveler, there is no road, you make your path as you walk." - Antonio Machado
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Joined: Jan 2006
Posts: 3,016
Imperial_AS_Kicker
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Imperial_AS_Kicker
Joined: Jan 2006
Posts: 3,016 |
James, I'm so glad you updated us on this. I was a bit worried when we didn't hear anything after your last episode and hosp. visit. I had no idea you actually had to see a dermatologist yet to confirm the obvious allergy to the med.
Cindy
" That which does not kill me only makes me stronger"
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Joined: Sep 2001
Posts: 6,248 Likes: 5
Addicted_to_AS_Kickin
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Addicted_to_AS_Kickin
Joined: Sep 2001
Posts: 6,248 Likes: 5 |
James I don't know what to say regarding how tough it seems for you to get the care you need without such long delay.
BUt I sure hope you know or someone around you is reminding you and aware how physically an dmentally tough you must be to keep plodding on with all you've already dealt with. You are amazing in all you can deal with
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Joined: Jul 2003
Posts: 2,962
Presidential_AS_Kicker
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OP
Presidential_AS_Kicker
Joined: Jul 2003
Posts: 2,962 |
Hi Cindy,
My rheumy probably hasn't seen this type of reaction before, so she is probably sending me to the dermatologist to find out exactly what it is. I've just updated the photo collection which can be found in another part of this thread.
Take care,
James
HLA-B27+, JRA diagnosis in 1981, re-diagnosed as AS in 1988. Also iritis, colitis, and psoriasis. NSD + low carb helps me. My health makes it hard for me to post in a timely way.
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Joined: Jul 2003
Posts: 2,962
Presidential_AS_Kicker
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OP
Presidential_AS_Kicker
Joined: Jul 2003
Posts: 2,962 |
Hi Steve,
I can see a dermatologist on the 17th, and I'm still having the blister reaction at the moment, and I even have pictures (just upload new ones today, which I will put on a cd before the appointment), so I don't think that appointment will be a flop. This seems like something that needs to be addressed right away, but it also seems like a typical experience for me (with biologic reactions). I wonder if I have to wait because I was calm as I can be when I saw my rheumy.
From what I understand, you have certainly put up with alot of different things yourself. Thanks for the reply.
Take care,
James
HLA-B27+, JRA diagnosis in 1981, re-diagnosed as AS in 1988. Also iritis, colitis, and psoriasis. NSD + low carb helps me. My health makes it hard for me to post in a timely way.
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Joined: Nov 2008
Posts: 1,970
Captain_AS_Kicker
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Captain_AS_Kicker
Joined: Nov 2008
Posts: 1,970 |
Hi James Just wanted to let you know I have following your story for sometime now. I hope the dermatologist will be able to confirm what we already know. If you are off Enbrel and the blisters go away by the 17th then what were they going to do? Guess? It's good that you have pictures but wouldn't have been easier for them to see the blisters right away. Sorry, I am either missing something or I am being too logical. Anyway I hope your reation subsides and your appointment goes well. 
I can not defeat you but I will not let you win
Jeff
Degenrative disc disease 2005
AS 2008 HLA-B27-
Fibromyalgia 2010
Disability 2012
Back to work part time 2013
Enbrel, Cymbalta,Oxycodone, blah blah blah blah
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Joined: Jan 2008
Posts: 21,346 Likes: 2
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346 Likes: 2 |
hi james,
looked at those new photos, sorry! they look pretty nasty. though i agree that it would have been best for them to see them in person, maybe even biopsy them, those photos are pretty clear, so hopefully they will help.
and those last two photos don't look like your hand, LOL! cute!
sue
Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
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Joined: Jul 2003
Posts: 2,962
Presidential_AS_Kicker
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OP
Presidential_AS_Kicker
Joined: Jul 2003
Posts: 2,962 |
Hi Sue,
I thought I deleted those two fuzzy pictures... maybe not. I just replaced them with the 2 good birdie pictures I had so far. It has been a really rough week for us with the inlaws, with some bad news about one of them arriving today, so I haven't been able to get any good pictures of the parakeets during the daytime. I will try to get to it soon though.
Take care,
James
Last edited by JamesB; 07/27/10 03:41 AM.
HLA-B27+, JRA diagnosis in 1981, re-diagnosed as AS in 1988. Also iritis, colitis, and psoriasis. NSD + low carb helps me. My health makes it hard for me to post in a timely way.
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Joined: Jul 2003
Posts: 2,962
Presidential_AS_Kicker
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OP
Presidential_AS_Kicker
Joined: Jul 2003
Posts: 2,962 |
Hi Jeff,
You make a very good point, as well as the others have that have commented already. I'll call the dermatologist's office in the morning and see if I can push my way in. The blistering problem is obviously not under control anymore.
Thanks for the reply,
Take care,
James
HLA-B27+, JRA diagnosis in 1981, re-diagnosed as AS in 1988. Also iritis, colitis, and psoriasis. NSD + low carb helps me. My health makes it hard for me to post in a timely way.
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