|
Forums33
Topics44,197
Posts519,915
Members14,168
| |
Most Online3,221 Oct 6th, 2025
|
|
Administrator/owner:
John (Dragonslayer)
Administrator:
Melinda (mig)
WebAdmin:
Timo (Timo)
Administrator:
Brad (wolverinefan)
Moderators:
· Tim (Dotyisle)
· Chelsea (Kiwi)
· Megan (Megan)
· Wendy (WendyR)
· John (Cheerful)
· Chris (fyrfytr187)
|
|
If you want to use this QR code (Quick Response code) just save the image and paste it where you want. You can even print it and use it that way. Coffee cups, T-Shirts etc would all be good for the QR code.
|
|
|
|
Joined: Jan 2008
Posts: 21,346 Likes: 2
Very_Addicted_to_AS_Kickin
|
OP
Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346 Likes: 2 |
still early in my venture, so i will be patient. oddly my stomach is better on the mobic than off it. found the same thing to be true on the pred. could be coincidence?
another funky symptom though, no BM for like 4-5 days, just very abnormal for me, and rather disconcerting. so took magnesium last night. under normal circumstances magnesium is too powerful for me. but worked like a charm for this situation.
anyway, very good to have others say it took a bit to kick in, makes it easier to be patient. so long as gastritis or edema don't kick in prior, i'll stick it out to see what happens. will be nice when i talk to the rheumy in a week or so (he told me to call) to be able to report something about the mobic, show him i'm doing all i can on my end to move forward.
sue
Spondyloarthropathy, HLAB27 negative Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.) LDN/zanaflex/flector patches over SI/ice vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K. chiro walk, bike no dairy (casein sensitivity), limited eggs, limited yeast (bread)
|
|
|
|
|
Joined: Mar 2007
Posts: 37
Member
|
Member
Joined: Mar 2007
Posts: 37 |
My experience with mobic is similar to Donna's. It doesn't seem to do much until you try going without it.
Cathy
|
|
|
|
|
Joined: Jan 2008
Posts: 21,346 Likes: 2
Very_Addicted_to_AS_Kickin
|
OP
Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346 Likes: 2 |
well, after three weeks, went off it. didn't really notice anything get worse.
then i tried ketoprofen, it worked, but one killed my stomach, so that's a no go.
9 down, x to go!
sue
Spondyloarthropathy, HLAB27 negative Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.) LDN/zanaflex/flector patches over SI/ice vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K. chiro walk, bike no dairy (casein sensitivity), limited eggs, limited yeast (bread)
|
|
|
|
|
Joined: Oct 2010
Posts: 253
Third_Degree_AS_Kicker
|
Third_Degree_AS_Kicker
Joined: Oct 2010
Posts: 253 |
I took it for 3 or 4 weeks. It did absolutely nothing. I got put on a relafan and it helped a little. Then it tore up my stomach really bad and set off a huge GI flare and had to go off it.
HLAB27+ A.S for 2 year. Humira, Enbrel, Simponi all tried now moving on to Remicade. Meth, sulfa, tramadol, etc...
|
|
|
|
|
Joined: Jan 2008
Posts: 21,346 Likes: 2
Very_Addicted_to_AS_Kickin
|
OP
Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346 Likes: 2 |
sorry to hear that brandon. hope you are either on something that is helping you by now or find something soon. 
sue
Spondyloarthropathy, HLAB27 negative Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.) LDN/zanaflex/flector patches over SI/ice vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K. chiro walk, bike no dairy (casein sensitivity), limited eggs, limited yeast (bread)
|
|
|
|
|
Joined: Feb 2010
Posts: 2,190
Major_AS_Kicker
|
Major_AS_Kicker
Joined: Feb 2010
Posts: 2,190 |
Mobic is the only thing I can take that doesn't make my UC flare. I have tried just about everything, over the years.
Donna Cherish your yesterdays, Dream your tomorrows, But live your todays. Do the very best you can leave the rest to God. God Bless,
|
|
|
|
|
Joined: Jan 2008
Posts: 21,346 Likes: 2
Very_Addicted_to_AS_Kickin
|
OP
Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346 Likes: 2 |
i'm glad you had that as it took you so long to finally get a dx and treated with the biologics! i was really surprised how mild it was (side effect wise) but then was reading (and confirmed by doctors) that its as close to a cox2 inhibitor without actually being one. i just found it odd that it didn't seem very effective, maybe if we had given it more time? i did read it can take like two weeks to kick in. who knows, maybe after the doc runs through the last of the nsaids, he'll cycle back to mobic? or maybe it will be on to ssz. though if that's the case, i'd like that to happen over christmas in case i can't tolerate the symptoms, at least i'll be on break. or if its especially good, then i'll be able to really enjoy christmas, the latter is what happened on aleve for the first week or two before the edema became too prominent.
sue
Spondyloarthropathy, HLAB27 negative Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.) LDN/zanaflex/flector patches over SI/ice vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K. chiro walk, bike no dairy (casein sensitivity), limited eggs, limited yeast (bread)
|
|
|
|
|
Joined: Feb 2010
Posts: 2,190
Major_AS_Kicker
|
Major_AS_Kicker
Joined: Feb 2010
Posts: 2,190 |
I tried the cox 2 inhibitors and they made me quite nauseous, for some reason. My GI had me try ssz when I was Dx with UC, hoping it would help both the UC and arthritis pains. Unfortunately, it didn't help either. I do know that it is a great help for many people with AS and IBD. I sure hope that you find something that works.
I keep thinking that Mobic doesn't works as well as I wish, but when I quit it for 2 weeks for a colonoscope, I really felt the difference. I couldn't wait to get back on it. It isn't as good as I would like it to be, but I don't have a choice. We have tried everything else.
Donna Cherish your yesterdays, Dream your tomorrows, But live your todays. Do the very best you can leave the rest to God. God Bless,
|
|
|
|
|
Joined: Jan 2008
Posts: 21,346 Likes: 2
Very_Addicted_to_AS_Kickin
|
OP
Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346 Likes: 2 |
thanks donna,
i wasn't looking forward to the ssz from what i had heard about it regarding nausea and my experience with nausea from a sulfa antibiotic, but now that i'm seeing first hand how different all these drugs can be, learning that trial and error seems to be the only way, just near impossible to predict.
but must say right now, the combination of flector patch for the SI, LDN for recovering from inflammation (like too much standing, etc), and the chiro to help my upper back and SI (i know i keep talking about him, but he truly saved my career, if not my life!) are working pretty well, until we find something better. i don't know what i'd do without these things; thinking back to how bad i was last year and now, like night and day.
sue
Spondyloarthropathy, HLAB27 negative Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.) LDN/zanaflex/flector patches over SI/ice vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K. chiro walk, bike no dairy (casein sensitivity), limited eggs, limited yeast (bread)
|
|
|
|
|
Joined: Feb 2010
Posts: 2,190
Major_AS_Kicker
|
Major_AS_Kicker
Joined: Feb 2010
Posts: 2,190 |
The only way we can figure out what drugs work for us is to just give them a try. We can see how different everyone on KA is in their treatment plan. My feeling is that I'm for anything that helps. I'm glad that you are doing better then you were.
Donna Cherish your yesterdays, Dream your tomorrows, But live your todays. Do the very best you can leave the rest to God. God Bless,
|
|
|
|
0 members (),
428
guests, and
230
robots. |
|
Key:
Admin,
Global Mod,
Mod
|
|
|
|