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rumble #414442 09/30/10 07:25 AM
Joined: Jan 2008
Posts: 21,346
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Sue22 Offline OP
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still early in my venture, so i will be patient. oddly my stomach is better on the mobic than off it. found the same thing to be true on the pred. could be coincidence?

another funky symptom though, no BM for like 4-5 days, just very abnormal for me, and rather disconcerting. so took magnesium last night. under normal circumstances magnesium is too powerful for me. but worked like a charm for this situation.

anyway, very good to have others say it took a bit to kick in, makes it easier to be patient. so long as gastritis or edema don't kick in prior, i'll stick it out to see what happens. will be nice when i talk to the rheumy in a week or so (he told me to call) to be able to report something about the mobic, show him i'm doing all i can on my end to move forward.



sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
avonldy #421517 11/24/10 11:43 PM
Joined: Mar 2007
Posts: 37
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My experience with mobic is similar to Donna's. It doesn't seem to do much until you try going without it.


Cathy
CathyLynn #422054 11/29/10 07:45 AM
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Sue22 Offline OP
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well, after three weeks, went off it. didn't really notice anything get worse.

then i tried ketoprofen, it worked, but one killed my stomach, so that's a no go.

9 down, x to go!



sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
rumble #422107 11/29/10 04:23 PM
Joined: Oct 2010
Posts: 253
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Posts: 253
I took it for 3 or 4 weeks. It did absolutely nothing. I got put on a relafan and it helped a little. Then it tore up my stomach really bad and set off a huge GI flare and had to go off it.


HLAB27+ A.S for 2 year. Humira, Enbrel, Simponi all tried now moving on to Remicade. Meth, sulfa, tramadol, etc...
Brandon #422111 11/29/10 05:01 PM
Joined: Jan 2008
Posts: 21,346
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Sue22 Offline OP
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sorry to hear that brandon. hope you are either on something that is helping you by now or find something soon. heart



sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
Sue22 #422124 11/29/10 06:03 PM
Joined: Feb 2010
Posts: 2,190
A
Major_AS_Kicker
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Posts: 2,190
Mobic is the only thing I can take that doesn't make my UC flare. I have tried just about everything, over the years.


Donna
Cherish your yesterdays,
Dream your tomorrows,
But live your todays.
Do the very best you can
leave the rest to God.
God Bless,
avonldy #422142 11/29/10 06:59 PM
Joined: Jan 2008
Posts: 21,346
Likes: 2
Sue22 Offline OP
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i'm glad you had that as it took you so long to finally get a dx and treated with the biologics! i was really surprised how mild it was (side effect wise) but then was reading (and confirmed by doctors) that its as close to a cox2 inhibitor without actually being one. i just found it odd that it didn't seem very effective, maybe if we had given it more time? i did read it can take like two weeks to kick in. who knows, maybe after the doc runs through the last of the nsaids, he'll cycle back to mobic? or maybe it will be on to ssz. though if that's the case, i'd like that to happen over christmas in case i can't tolerate the symptoms, at least i'll be on break. or if its especially good, then i'll be able to really enjoy christmas, the latter is what happened on aleve for the first week or two before the edema became too prominent.



sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
Sue22 #422172 11/29/10 11:09 PM
Joined: Feb 2010
Posts: 2,190
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Major_AS_Kicker
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I tried the cox 2 inhibitors and they made me quite nauseous, for some reason. My GI had me try ssz when I was Dx with UC, hoping it would help both the UC and arthritis pains. Unfortunately, it didn't help either. I do know that it is a great help for many people with AS and IBD. I sure hope that you find something that works.

I keep thinking that Mobic doesn't works as well as I wish, but when I quit it for 2 weeks for a colonoscope, I really felt the difference. I couldn't wait to get back on it. It isn't as good as I would like it to be, but I don't have a choice. We have tried everything else.


Donna
Cherish your yesterdays,
Dream your tomorrows,
But live your todays.
Do the very best you can
leave the rest to God.
God Bless,
avonldy #422177 11/29/10 11:31 PM
Joined: Jan 2008
Posts: 21,346
Likes: 2
Sue22 Offline OP
Very_Addicted_to_AS_Kickin
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thanks donna,

i wasn't looking forward to the ssz from what i had heard about it regarding nausea and my experience with nausea from a sulfa antibiotic, but now that i'm seeing first hand how different all these drugs can be, learning that trial and error seems to be the only way, just near impossible to predict.

but must say right now, the combination of flector patch for the SI, LDN for recovering from inflammation (like too much standing, etc), and the chiro to help my upper back and SI (i know i keep talking about him, but he truly saved my career, if not my life!) are working pretty well, until we find something better. i don't know what i'd do without these things; thinking back to how bad i was last year and now, like night and day.



sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
Sue22 #422292 11/30/10 08:34 PM
Joined: Feb 2010
Posts: 2,190
A
Major_AS_Kicker
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Major_AS_Kicker
A
Joined: Feb 2010
Posts: 2,190
The only way we can figure out what drugs work for us is to just give them a try. We can see how different everyone on KA is in their treatment plan. My feeling is that I'm for anything that helps. I'm glad that you are doing better then you were.


Donna
Cherish your yesterdays,
Dream your tomorrows,
But live your todays.
Do the very best you can
leave the rest to God.
God Bless,
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