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Joined: Feb 2004
Posts: 854
Master_AS_Kicker
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OP
Master_AS_Kicker
Joined: Feb 2004
Posts: 854 |
Hi friends,
I got my MRI results the other day. Here is what happened.
- I have siratica in my lower spine. This is mild to moderate at it's current state. There is an unidentified 'blob' in my lower right side of my si joints. The radiologist is not too concerned about it. I will have a CT scan of it in late November/December. I have to get my ankle/foot broken again in late December. The mri showed significant damage that was not healed properly from the break in 2009. There is also moderate inflammation in my hips, shoulder blades and si joints.
- The blood work showed Mixed Connective Tissue Disorder. This goes hand in hand with the Fibromyligia.
So that is the dealio with me! It's all just labels for it hurts to do everything and exhausts me at all costs.
On the plus side of all this, I'm going back to school (work) tomorrow. First day of work in four months:)
Take care, Sammie
Samantha
A.S. Fibro Undiagnosed Chronic Fatigue
Live like nobody is watching, Love until you can't and Travel to the moon & back
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Joined: Sep 2001
Posts: 2,762
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Joined: Sep 2001
Posts: 2,762 |
Hey Sammie Well at least they put names to most of your pains. Now if they can make those feel better. Good to hear taht you are going back to work. Take it easy, don't over do it. Keep us posted
Keep Kickin'AS Chris
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Joined: Nov 2001
Posts: 18,187 Likes: 7
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Nov 2001
Posts: 18,187 Likes: 7 |
Hmmm, interesting that there was inflammation evident in three of the usual spots for AS. Hopefully, someone will cotton on to that.
I'm glad you're back to work, Sammee. I don't know what's worse, the pain, or not being able to get away from the pain by going to work every day. I think you know what I'm trying to say.
Warm hugs,
Kat
A life lived in fear is a life half lived. "Strictly Ballroom"
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Joined: Jun 2010
Posts: 3,865
Royal_AS_kicker
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Royal_AS_kicker
Joined: Jun 2010
Posts: 3,865 |
Yay for work! Glad you have an answer 
ANA+ RF+ Rh- HLAB27+ Dx JRA 1967, GAD 1997, AS 2009, HMs 2010, CPS 2013 pulmonary edema w/ NSAIDS 2009
Movin' it so I don't lose it!
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Joined: Jan 2008
Posts: 21,346 Likes: 2
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346 Likes: 2 |
hi sam, thanks for the update. glad you can go back to work, i know what it was like to be out of work myself last year. may i ask how you broke your foot? my new rheumy wants me to go get xrays of my feet, apparently its too common for us to have foot issues. may i ask how they see "mixed connective tissue disorder" in the blood? what blood test(s) show that? just curious. regardless of what they call it, i suppose the important thing is getting treatments that lessen the pain. 
sue
Spondyloarthropathy, HLAB27 negative Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.) LDN/zanaflex/flector patches over SI/ice vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K. chiro walk, bike no dairy (casein sensitivity), limited eggs, limited yeast (bread)
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Joined: Feb 2004
Posts: 854
Master_AS_Kicker
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OP
Master_AS_Kicker
Joined: Feb 2004
Posts: 854 |
Thanks Chris for the cheerful response. work is going good:)
Samantha
A.S. Fibro Undiagnosed Chronic Fatigue
Live like nobody is watching, Love until you can't and Travel to the moon & back
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Joined: Feb 2004
Posts: 854
Master_AS_Kicker
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OP
Master_AS_Kicker
Joined: Feb 2004
Posts: 854 |
You would think, wouldn't you Kath; baa to doctors. I now have an ear infection and two cysts in my sweat glands. On heavy antibiotics and shaking my head; when does it stop... oh that is right it doesn't stop; i just keep rolling with the punches and drinking the lemonade.
Oh... ps I got the best gouraous dress for my sisters wedding. It matches my 'walking stick' perfectly; even though my family thinks it's hidious that I use the walking stick at the wedding- I say, do you want me to walk and talk or what? Oh families. Take care darling!
Samantha
A.S. Fibro Undiagnosed Chronic Fatigue
Live like nobody is watching, Love until you can't and Travel to the moon & back
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Joined: Feb 2004
Posts: 854
Master_AS_Kicker
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OP
Master_AS_Kicker
Joined: Feb 2004
Posts: 854 |
Hi Sue,
I broke my foot in February 2009, down hill skiing. Skiied flat on my face, did a somersault and stuff, and well landed at the bottom where a lot of parimetics were waiting for my arrival. Lovely way to spend a sunny Saturday afternoon, may I tell you!
Sammie:)
Last edited by samzee; 09/30/10 01:16 AM.
Samantha
A.S. Fibro Undiagnosed Chronic Fatigue
Live like nobody is watching, Love until you can't and Travel to the moon & back
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Joined: Feb 2004
Posts: 854
Master_AS_Kicker
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OP
Master_AS_Kicker
Joined: Feb 2004
Posts: 854 |
Thanks Erica. It is good to know what is going on with this body of mine:)
Samantha
A.S. Fibro Undiagnosed Chronic Fatigue
Live like nobody is watching, Love until you can't and Travel to the moon & back
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Joined: Feb 2004
Posts: 854
Master_AS_Kicker
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OP
Master_AS_Kicker
Joined: Feb 2004
Posts: 854 |
I just had an appointment today, and the diagnoses of AS came in positive. So once again I am a true A.S. Kicker...
Weddingness everywhere!
Sammie:)
Samantha
A.S. Fibro Undiagnosed Chronic Fatigue
Live like nobody is watching, Love until you can't and Travel to the moon & back
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