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Joined: Oct 2006
Posts: 57
Active_Member
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OP
Active_Member
Joined: Oct 2006
Posts: 57 |
Hi all,
I have just been released from hospital yesterday after being admitted with severe kidney pain & tenderness. Ultrasound showed a very swollen right kidney with visible lessions. The diagnosis is papillary necrosis. After sometim in hospital things are settling down but long term not sure. They said the cause of the necrosis (tissue death) is my long term use of NSAIDS & prednisolone. I wondering if anyone else has had kidney problems as a result of their AS treatment & if so what their long term prognosis is. Things are also more complicated as I am 20weeks pregnant with our first baby so all treatment has to be conservative until bub arrives safe.
I am keen to hear other peoples experiences with kidney complications.
Thanks guys, as always this is the first place I turn for answers xx
The most authentic thing about us is our capacity to create,
to overcome,
to endure,
to transform,
to love,
and to be greater than our suffering.
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Joined: Jan 2004
Posts: 9,848 Likes: 6
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2004
Posts: 9,848 Likes: 6 |
Leah - Check it out with a google search. Think you will find that kidney problems 'do' indeed go with Pred & NSAIDs use - use long term that is.
Me? I sure do so hate the biggie drugs - scare me.
Congrats on bub, but an anxious time for 'you' *and on b/h of bub. Take care and go well -
Molly C (France)
Keeping on Keeping on (as one does)
MollyC1i - Riding OutAS
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Joined: Jan 2008
Posts: 21,346 Likes: 2
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346 Likes: 2 |
sorry to hear of the kidney problems. i've only used pred once and nsaids not too often other than vioxx every few days for a couple of years, but that was in the early 2000s. i have an US done routinely to monitor a gallladder polyp and just the other day saw that my kidneys look good. but thank you for the warning, as i'm back to finding an nsaid i can tolerate, if one exists, and if not, onward.
sue
Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
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Joined: Jan 2009
Posts: 4,501 Likes: 1
Supreme_AS_Kicker
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Supreme_AS_Kicker
Joined: Jan 2009
Posts: 4,501 Likes: 1 |
Sorry to hear of the kidney issues...pretty scary for you, I'm sure. Best of luck to you and the soon-to-be-bub.
DX: Psoriatic Arthritis, Osteoporosis, Psoriasis
Meds: MTX since Oct 2009, 15mg/week. Cimzia-restarted after 2 yrs away.
Epidural Steroid Injections x8; Lumbar Radiofreq Ablation x2
SIJ Steroid Injection x3; Bilateral Radiofreq Ablation SIJ x9
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Joined: Mar 2008
Posts: 215
Second_Degree_AS_Kicker
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Second_Degree_AS_Kicker
Joined: Mar 2008
Posts: 215 |
Hi Leah
Cant believe you are 20 weeks already! I spose the baby's wastes would be contributing to the load on your kidneys also?
Sorry, I haven't heard of this one but just wanted to send big hugs your way
Take it easy.
Felicity
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Joined: Oct 2006
Posts: 57
Active_Member
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OP
Active_Member
Joined: Oct 2006
Posts: 57 |
Thanks for the replies guys. I saw my rheumy today & basically we're going to get me and bub through the rest of the pregnancy as best as possible & then decide the best way to manage the AS & Crohns. Once again, I appreciate the support xxxx
The most authentic thing about us is our capacity to create,
to overcome,
to endure,
to transform,
to love,
and to be greater than our suffering.
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Joined: Nov 2007
Posts: 6,269
Addicted_to_AS_Kickin
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Addicted_to_AS_Kickin
Joined: Nov 2007
Posts: 6,269 |
Hi Leah, I'm sorry to hear you're having such a rough time, especially during pregnancy...  I have had a really hard time with my kidneys, basically all of my life and it has been an almost constant problem for the last 2 years or so, I've had Pyleonephritis/Urosepsis, no less than 12 times in the last 18-24 months and during one of my pregnancies, I was hospitalized for the last 2 months due to Pyleo I lost 1/3 of my bladder at age 7 from bladder necrosis...I don't want to bore with every little detail so I'll just sum it up by saying that it all ended well, it took about 2 years for that flare to clear up, but it did and I had about a 10 year stretch without having any serious kidney problems, so that was great...  ...please keep us posted on your progress... 
Age 7- Kidney Necrosis Age 11-Bursitis Age 14-Costo Age 17-Psoriasis Age 32-Thoracic Outlet Syndrome Age 33-Sacroilitis Age 35-Interstitial Cystitis Age 40-AS Age 44-Fibro Age 44-PsA Age 45-MS Age 46-Sjogrens Age 46-Raynauds Age 47-PF  
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