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Oct 6th, 2025
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If you want to use this QR code (Quick Response code) just save the image and paste it where you want. You can even print it and use it that way. Coffee cups, T-Shirts etc would all be good for the QR code.
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Joined: Aug 2010
Posts: 85
Apprentice_AS_Kicker
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OP
Apprentice_AS_Kicker
Joined: Aug 2010
Posts: 85 |
Hi Everyone,
I had my first Remicade infusion 5 days ago. So far I have had no major changes other than feeling pretty tired.
Just wondering how long it has taken those of you out there on anti tnfs to experience the benifits of these meds?
Also, to what extent did your symptoms improve?
I was hopeful that I would suddenly feel 100% better after a couple of days or so but I'm realising that was probably unrealistic.
Thanks for sharing your experiences. Meanwhile, I will continue to corss my fingers...
Last edited by triathlete; 11/22/10 10:42 AM.
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Joined: Apr 2010
Posts: 716
Decorated_AS_Kicker
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Decorated_AS_Kicker
Joined: Apr 2010
Posts: 716 |
I felt the benefits of Humira really fast. But, we are all different so give it time.
John
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Joined: Jul 2001
Posts: 3,334
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Joined: Jul 2001
Posts: 3,334 |
Hi triathlete. Some people get results very quickly and others don't so don't worry. Remicade is like all other drugs and its effects vary as much as the people taking them. As I'm fond of saying, we're all wired differently so expect different results/reactions etc.
Some members have been on 2 or 3 biologics as one or the other didn't work well enough.
I'm waiting to get approval for Humira and will be hoping for quick changes but, realistically, I'll accept it if the results aren't what I wanted.
Good luck!
Timo 
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Joined: Dec 2008
Posts: 5,231
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Joined: Dec 2008
Posts: 5,231 |
Is this your first biologic, Timo?
Wendy
Rheumatoid Arthritis
Methotrexate, Celebrex, Plaquenil
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Joined: Nov 2001
Posts: 18,187 Likes: 7
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Nov 2001
Posts: 18,187 Likes: 7 |
Tri, I hope it kicks in for you as it has for so many others.
Hugs,
Kat
A life lived in fear is a life half lived.
"Strictly Ballroom"
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Joined: Jan 2009
Posts: 4,501 Likes: 1
Supreme_AS_Kicker
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Supreme_AS_Kicker
Joined: Jan 2009
Posts: 4,501 Likes: 1 |
Congrats on the 1st infusion. I'm 2 ahead of you and feeling nothing yet. On the 1st one, the only thing I noticed was a weird dizziness about 12 hrs after the infusion, when I got home from work. If I looked down at the floor (discovered this while watching my cats get into a scuffle at my feet), then I would get a 'spinning room' feeling. It stopped when I looked up. Tested it out a few times over the next hour and it continued the same. Decided to go to bed and see if it persisted the next day. It didn't. And it didn't happen after the next 2 infusions, so maybe it was just a coincidence? Go figure.
After the 2nd one, I had a few good days. Thought this was an early response. I suppose now, it was just a normal fluctuation of my symptoms. It's a month since 3rd infusion and NOTHING has changed. If anything, I seem a bit worse. Grrrrr.
Anyway, good luck to you. Hope this is magic like others have experienced.
DX: Psoriatic Arthritis, Osteoporosis, Psoriasis
Meds: MTX since Oct 2009, 15mg/week. Cimzia-restarted after 2 yrs away.
Epidural Steroid Injections x8; Lumbar Radiofreq Ablation x2
SIJ Steroid Injection x3; Bilateral Radiofreq Ablation SIJ x9
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Joined: Jul 2001
Posts: 3,334
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Joined: Jul 2001
Posts: 3,334 |
Yes, it'll be my first and I'm waiting as fast as I can.
Timo
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Joined: Dec 2008
Posts: 5,231
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Joined: Dec 2008
Posts: 5,231 |
Too bad we don't have a running on the spot smilie! Keep on running. Hope you get there soon. 
Wendy
Rheumatoid Arthritis
Methotrexate, Celebrex, Plaquenil
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kevin_A
Unregistered
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kevin_A
Unregistered
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We do but I think its permanently in the Anal leakage thread.  Sorry Kevin
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Joined: Jan 2008
Posts: 21,346 Likes: 2
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346 Likes: 2 |
no biologics here...yet! but wanted to wish you luck! 
sue
Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
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