Kickas.org Forums Treatments, Drugs and Alternatives Alternatives and ALCHEMISTS radon therapy in jachymov

Hi Finnari - good to hear that you are giving Jackymov a go! It would be great if you could share your experiences and get some more personal accounts out there.

If anyone is interested in Radon thearapy from the point of view of someone with AS, feel free to check out my experience at the Gasteiner Heilstollen:

http://www.richpics.co.nz/Family-and-Friends/My-Radon-Experience/9902987_FBwhi

Happy to answer any questions.

Rich

Interesting that I asked the liason there to ask the doctor if I should stop taking my TNF inhibitor enbrel before I start there treatment. the answer was no it's fine to continue.

Not sure how I'm going to handle this yet. My feeling is to stop enbrel and go with this treatment and when it stops working to use enbrel as a stop gap measure before doing it again.

I was in jachymov last April may for the second time and planning to return in April 2011. After 3 weeks of treatments, the results were the same as in previous years: It took six weeks before any noticeable improvement and lasting for about 10 months. From the patients I've met(some have been going for treatments for 15 years) the degree of result depended also on one's lifestyle/diet and mental outlook. My fist time I experienced some serious flares after the treatments, and much less after my second time.

Good luck in January. I suggest you bring things that will keep you occupied and brush up on German. Give my best to Dr. Jindrich. He speaks good English.

Thanks RC I was hoping you would chime in. I'm glad they worked for you. Did you take any TNF inhibitors? or other meds?

Sorry for the delay in answering your question, because I've been out of town. The only medications I am taking now is some voltaren 75mg/day mainly for my swollen left foot. Other than that I am on vitamins, homeopathic and mineral supplements. In addition I am on a low starch no dairy product diet. I paln to return for my third year in the April/May time frame. Best of luck in Jachymov. Hope your treatments are as successful as mine and feel free to contact me if you have any additional questions. Best, RCP

Thanks RC. I actually saw your review of the hotel on a travel site. You mentioned the food was not the greatest. i eat a no wheat diet and am taking some of my own food.

Was there any restaraunt in town that you liked? Is there any entertainment/bars in town?

I am bringing my yoga mat, a lot of books/movies to occupy my time.

You can request special meals, however; it's not the greatest. Forget about restaurants in Jackymov. On has to take the bus to go into the town of Kalovary.

I leave Sunday for my three week treatment. It seems crazy I'm going to some eastern europe town to soak in radon baths but what the hell here I go.

Hey, best of luck. I'm based in Vienna, not far from Jachymov. There is a very active AS selfhelp group in Vienna and they regularly go to Jachymov together for a few days. They really like it there.

It is something I'd like to try one day also. Over here we are 'spoiled', as we have the radon mines (and a stay there can be paid by Austrian social services)and Jachyomov, both within easy reach.

Let us now how it went.

Christina

I was reading a report from an Aussie physio who runs an AS management programme here. She visited Bad Gastein and another radon mine when she was at a world AS conference...apparently in Germany every person with an AS diagnosis is entitled to a 2 week government-paid stay at a radon therapy resort - mine visits, massages, hydrotherapy and stretching / strengthening classes included!

Ich möchte ein deutscher Staatsbürger sein!