Kickas.org Forums Ankylosing Spondylitis General Discussion #1 AS Web Support Group celiac minus but gluten sensitive

Sue,

Dr. Thomas O'Byran specializes in gluten sensitivity. His website is Thedr.com. He has webinars on the subject that are free. He was also been interviewed by Sean Croxton on Wellness Underground Radio a couple of weeks ago. The UW website has the interview on the site, so you can listen to it now if you want. Very interesting.

I too am neg for celiacs, but have two alpha and two beta subunits that were positve which means that I am genetically predisposed to being gluten sensitve. Don't know if your tests covered the alpha and beta subunits. It helped to explain a lot.

Going gluten free is a pain at first but it is worth it to feel good. Take care.

thanks cemc and jeanne,

seems like there's a lot more to this celiac / gluten sensitivity stuff than initially meets the eye.

i have a new doctor that knows i've already had the biopsy and antibody and gene blood work but just had me get blood work done for yet another antibody for celiac.

its all very interesting.

i really am mostly gluten free these days anyway since i'm low starch anyway. most of my starch comes from root veggies and beans. the less complex carbs i eat other than beans, the better my blood sugar. so sort of by default, i'm eating very little gluten. can't say i feel any different than my blood sugar being better. GI issues and arthritis really about the same either way.

i just like when studies show how we need to change our thinking. and this was a good one to remind patients and doctors that just because tests show one thing, doesn't mean that's the whole story. negative data is never as good as positive data at being convincing, as you said cemc.