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Joined: Dec 2009
Posts: 221
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Second_Degree_AS_Kicker
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Second_Degree_AS_Kicker
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Although I visit the site daily I rarely post. The main reason is as soon as I have some success, I post and you guessed it, setback!

Summary
LSD early December 2009
NSD late December 2009
No dairy January 2010
No sugar or fruit September 2010. This definitely helped.
Antibiotics (doxy 100mg twice per day). This helped initially.

Diet (starting weight 77/78kg now about 71/72kg and I am 5’11” or 1.80m)
Lots of oils (200ml) per day…if I don’t I lose too much weight…coconut and olive oil.
Spinach, broccoli (raw), salad, greens by the bucket load, alfalfa.
Lots of kangaroo (game meat), free range chicken and lamb once per week.
Daily sardines, tinned wild salmon some tuna.
Lots of coconut flour (75g per day.)
Liberal servings of organic butter…I wish I could get grass fed!
I tried flaxmeal and nuts but I am not sure if I react to them. I will keep experimenting.
A couple of unpasteurised beers per week…I think they may cause a reaction though.

Regime
Daily salt purge. This has helped a lot. I have done it every day for 3 weeks.
http://www.thesuv.org/thesaltpurge.html
NSD, no dairy, no fruit/sugar. I am wary of the fruit I buy in Australia. It is often starchy as are many vegetables. I hope to introduce lychees and berries over the next few weeks.
High fat and protein diet plus minimal carbohydrates…I seem to struggle a bit with carbs.

Supplements

I am not very good at this as I keep forgetting.
100 ml ofcoconut kefir every day.
5g glutamine, 250mg magnesium, mega B complex, vitamin C 3-5g, 25ml cod liver oil, 5000iu vitamin D most days. I am definitely looking to improve this.

Antibiotics
October 2010 100mg x 2 Doxy.
January 2011 (since starting the daily salt purge) 100mg in the afternoon. I will look to reduce it when I can. I have noticed no difference at 100mg per day compared to 200mg. I will monitor closely and hopefully move to 50mg MWF as per the roadback.org protocol.

Experiments
Xylitol…a gentler alternative to the salt purge and a pleasant addition to coconut flour. I have heard excellent things about it.
Nuts…I will keep experimenting. I will try macadamias and almonds again this week. I need the carbs.
Milk kefir…for gut healing properties. This week I will risk dairy!!!
Raw organic garlic in the morning.

Results
Mixed!
Two weeks ago I had AS in my shoulder, left hip, right ankle, right abductor! None of it was super painful, just plain awkward and annoying. I was unable to hide my limps! Very annoying to have a limp on both sides of the body
Today I have no SI pain. I can count on my hands the number of days without any SI inflammation. This has dogged me for years. I have inflammation in my thoracic area (3/10) and my right abductor (3/10). Today I am probably as good as I have been in years. Before I started the diet my achilles were so inflamed I was preparing for them to snap and discussing the consequences with my chiropractor! I also couldn't sleep for more than a few hours without back pain.

I feel like I have made progress. The salt purge is the missing link. It has made a massive difference. I believe it cleans the alimentary canal preventing further proliferation of pathogens. It also flushes out the bowel providing a daily colonic. Is this sustainable? I will watch it closely.
The antibiotics support the salt flush. I take them at around 4pm 2 hours away from food. The idea is that the pathogens are taking two blows each day. Well it makes sense to me.

Goals
Remission!
A broader diet after I have experienced some gut healing. A full paleo diet and life style.

Comments
I am super strict and NEVER deviate from the NSD.
If I have any more setbacks I will hit the harder antibiotics.
I regularly see an excellent chiropractor
I basically know that if I ate protein, fat and salad I would have no symptoms eventually. Unfortunately I have always had an excellent metabolism. I have tried this for a day or two but weight loss is absolutely brutal. I need some carbs and here lies the problem, which carbs are safe? Because I believe that the pathogens have formed colonies using the alimentary canal as a freeway, my reactions and inflammation are not always diet related. Throw in physical activity that can cause inflammation and it is very difficult to determine the cause of my aches and pains.

Conclusion
If people want to comment, no worries. Also, all suggestions considered. I am happy to answer any questions.
I am not 100% but I feel like I am making progress. In short, I am better off than I was 13 months ago and I feel I am improving. It has been very slow progress! However, incrementally I am moving forward. This of course could change!

Thanks to John (Dragonslayer), roadback and others for giving me fantastic support and information.

Cheers
Keith

Last edited by keit_nufc1; 01/09/11 04:55 AM.
Joined: Apr 2009
Posts: 1,595
Gold_AS_Kicker
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Always interested to hear of your endeavours, Keith!

I must admit to falling in a bit of a hole of late - sick of the whole process and doing a bit of sneaky comfort eating to spite myself! devil2 Stoopid really....

However, I am back on the doxy and I do think it has helped, despite my transgressions.

Keith - I have wondered about purging for a while - don't fancy giving myself too many colonics - what would the teenagers think when they saw the hose?!?!?! I read the info on the site - can you really manage to down a litre and then eat brekky shortly afterwards? And does it rip through you in less than half an hour?

I am thinking of pulling my finger out and getting back on the VERY straight and narrow - I would start my new regimne with a 3 day fast and I think a purge is a great thing to add in.


Louise

Happy to be a physio by day, not happy to be a Spondy 24/7! wink3
Joined: Dec 2009
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Second_Degree_AS_Kicker
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There is no hose Louise! Just drink the salt water and stay close to the bathroom for 1 to 2 hours. I can feel the flare subsiding through the day after the purge. It sweeps away all undigested food and also (I think or hope) acts as an antiseptic through the alimentary canal.

The best way to do the purge is to drink the water as warm as you can with the tablespoon of salt. Drink it in 5 minutes. That is the hard part. If you can get over the taste the rest is easy. Wait 15 minutes and drink 2 to 3 glasses of water, this accelerates the process. About 30 minutes later its time to camp outside the bathroom. I normally eat breakfast within an hour of beginning the process. It took a few goes to get an appetite up but now its just part of my routine. If I can get inflammation free I would look to do it every second or third day...but who knows.

The best salt is celtic unrefined. Himalayan tastes particularly awful!

I am hard core so there is probably no need to do it every day. However, I have progressed so slowly over the last 13 months that it seems to have pushed me forward...famous last words.

According to roadback doxy needs to be taken 2 hours before and after food. I was doing ok on doxy 20 minutes before food until I found out foods like spinach (my staple) bind with it and render it useless. I switched to the +/- 2 hours and went into all sorts of flares. I think 100mg twice per day was possibly ripping up my stomach (although I didn't feel it internally). Now I purge in the morning to get rid of anything undigested and take my doxy (one 100mg shot) at about 4 pm, 2 hours before dinner.

I am definitely doing better now I have established this regime. I am not perfect but I am very, very slowly progressing. If anyone is reading this and has had limited success as I have be very, very patient.

Cheers

Keith

Joined: Jan 2004
Posts: 9,848
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Very_Addicted_to_AS_Kickin
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Keith - Only comment I can make is the lamb. Red meat is particularly inflammatory and of all the red meats, lamb is the *worst! So, cut the red meat. Eat poultry, game, white meat - including rabbit. These are all good protein foods.

Supplements? Zinc. Need zinc as well as.

Otherwisr seem to be on a good regime.

good luck -

Molly C (France)


MollyC1i - Riding OutAS
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Posts: 221
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Second_Degree_AS_Kicker
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Posts: 221
Thanks Molly.

I will add the zinc and be mindful of lamb. Up until 4 months ago I had only eaten fish for 13 years, 10 of those as a vegetarian. It's one big learning curve.

Cheers

Keith

Joined: Feb 2010
Posts: 589
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Sergeant_AS_Kicker
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Yeah I also found that the weight loss was pretty brutal on very strict NSD. Full credit to you though Keith, you're still going and still going strong. Good luck mate

Joined: Dec 2009
Posts: 221
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Second_Degree_AS_Kicker
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Thanks mate.

I think as long as there is progress no matter how small it is worth carrying on with the nsd.

Keep at it if you can.

Cheers

Keith

Joined: Apr 2002
Posts: 304
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Fourth_Degree_AS_Kicker
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Hi keith, I am presently in the UK and will be at the game on Sunday. George

Joined: Dec 2009
Posts: 221
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Second_Degree_AS_Kicker
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Second_Degree_AS_Kicker
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I thought you were going to mention Stevenage!

I am very jealous. However, my bad luck at derby games is legendary. I have only seen one win...and I missed David Kelly's winner at the only one I saw in 20 years of supporting Newcastle.

Just make sure you don't eat one of those pies!

Cheers

Keith

Joined: Apr 2009
Posts: 1,576
Gold_AS_Kicker
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trying the salt purge. can only get through half in 10 minutes. yeargh! I'm pretending I'm drinking soup, but if I try to drink too fast my throat involuntarily constricts.

is this really possible???


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