Administrator/owner: John (Dragonslayer) Administrator: Melinda (mig) WebAdmin: Timo (Timo) Administrator: Brad (wolverinefan)
Moderators:
· Tim (Dotyisle)
· Chelsea (Kiwi)
· Megan (Megan)
· Wendy (WendyR)
· John (Cheerful)
· Chris (fyrfytr187)
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Yep, I felt like a bonehead. Wasn't that a dumb thing to do? lol At least I'm original!
Thought someone might get a chuckle out of it. I could laugh at it only after the nurse said she could get me another one - I wanted to cry, thinking it would be another 30 days before I could start. The psoriasis on my hands is really getting pretty bad (that's a new thing) and my feet are pretty painful. My rheumy still doesn't even think it's AS at this point, but when I first went on Enbrel I was so much better, so that's the only reason he's rx'ing it. The new juice should be here next week, thankfully.
I'm still pretty bad when it comes to the usual game - nausea, vomiting, neuropathic pain in legs and eye pain. I've gone through every avenue I can take in Canada, according to my docs, so all that's left is lots and lots of morphine and zofran, and trying to figure out "new" normal.
Maybe one of these days if I will the lottery, I'll head down to Mayo or something.
Can't wait for Spring to get here....
How are you all doing? (I wanted to reply to everyone, but it's not a good day, sorry....)
oh please don't worry about individual replies! we're just happy to see you and thrilled that you're trying simponi!
sue
Spondyloarthropathy, HLAB27 negative Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.) LDN/zanaflex/flector patches over SI/ice vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K. chiro walk, bike no dairy (casein sensitivity), limited eggs, limited yeast (bread)
Oh my gosh Megan! Oh dear, lolol, that does sound like a KA comedy routine or something. Stupid auto-injector pen! Oh you poor thing, you must have been so upset until you found out they would replace it for you, thank goodness.
I am very excited to hear that your rheumy is trying you on Simponi! At least he is trying something finally, eh! Oh man how I hope it will bring you some relief. You so deserve to feel better and you've suffered with such horrid symptoms for way too long now.
One more week then, okay, I will be crossing my fingers for a big positive result!
The simponi thing is being put on hold - not really sure why. They didn't ever get me that new auto-injector. They didn't even start the paperwork for Blue Cross coverage. They even told me to stop calling to ask questions. I'm really, really frustrated.
hoping its a temporary setback! as for not calling, can a doctor advocate for you? i swear we all have the patience of saints!
sue
Spondyloarthropathy, HLAB27 negative Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.) LDN/zanaflex/flector patches over SI/ice vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K. chiro walk, bike no dairy (casein sensitivity), limited eggs, limited yeast (bread)
at them!
