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Joined: Apr 2002
Posts: 3,607
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OP
Joined: Apr 2002
Posts: 3,607 |
My advice to you all - don't taste Simponi. lol  My rheumy *finally*, after years of enbrel petering out on me, decided to move me to Simponi.  He and his nurse gave me an autoinjector of Simponi to take home and try. Read the instructions, googled some info, but do you think I could get the silly thing to work? No matter what I did right, it would not stab me and deploy the juice inside.  I was staring into the needle part when it finally clicked and spat all over my face. Yep. It tastes pretty bad. $2500 of med all over the place.  The nurse felt badly for me and found a way to order a new one for me - for free. You'd think after years of injecting enbrel with the ordinary injections and pre-filled syringes, that I could handle a simple auto-injector. lol I think I'll let the nurse auto-inject me when it comes in next week. And I've made sure the pharmacy is ordering the plain old pre-filled syringes for me from now on. lol I swear I can still taste that gross taste in my mouth. ick. Thought I'd share.  Hope you're all well.  
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Joined: Nov 2003
Posts: 8,190
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Nov 2003
Posts: 8,190 |
Oh Sweetheart,
I know it was so not funny, but I wish I could have been there..lol
I think after all both of us have been thru we would have just exploded into laughter might have cried first but then we would have laughed.
I am SO glad that at least a couple of things have been going your way.
I am still waiting for our week on the beach!
Love you girl!
Lisa
Speak kindly, Live simply, Care deeply, Love generously, and BLAH, HA, HA, LOUDLY! every chance you get.
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Joined: Mar 2008
Posts: 3,233
Imperial_AS_Kicker
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Imperial_AS_Kicker
Joined: Mar 2008
Posts: 3,233 |
Megan! Like Lisa, I don't know whether to cry or laugh at that!  I choose laughing, it DOES sound like a scene from a KA sitcom or something (or "Annie Hall" when Woody Allen during a '70s party, sneezes at the worst time possible) I guess this has a better chance of being funny to you next week if you get some help from the medication, sure hope so!
Dow
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Joined: Jul 2003
Posts: 2,962
Presidential_AS_Kicker
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Presidential_AS_Kicker
Joined: Jul 2003
Posts: 2,962 |
Hi Megan,
I'm glad the nurse was nice enough to get you a replacement for free. As funny sounding as the squirt in the face part was lol, I know I would have been really mad if it happened to me... mostly because those meds are sooo expensive, and secondly because something squirt me in the face lol. I'm glad it's being taken care of... you must be feeling so relieved about that too (as much as I would).
Take care,
James
HLA-B27+, JRA diagnosis in 1981, re-diagnosed as AS in 1988. Also iritis, colitis, and psoriasis. NSD + low carb helps me. My health makes it hard for me to post in a timely way.
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Joined: Mar 2010
Posts: 132
Journeyman_AS_Kicker
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Journeyman_AS_Kicker
Joined: Mar 2010
Posts: 132 |
Hi Megan I go for the pre filled syringe every time. I hate the auto injectors. Thats squirt in the face made me laugh...sorry! Noelene
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Joined: Sep 2009
Posts: 1,336 Likes: 4
Bronze_AS_Kicker
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Bronze_AS_Kicker
Joined: Sep 2009
Posts: 1,336 Likes: 4 |
hmm, I asked my doctor about taking Simponi for the Scoliosis and he said no. Not enough literature on it. I was disappointed because I read they are going to be expanding the use of this drug: http://www.medicalnewstoday.com/articles/207720.php
Last edited by Magician; 01/27/11 02:29 PM.
- Carpal Tunnel in BOTH hands
- Depression (MDD) Major Depressive Disorder
- Pituitary Adenoma
- Scoliosis
- Spinal Arthritis with bone spurs on spine
- Multiple Scoliosis diagnosed
- Herniating spinal disc
- HLAB27+
- Final diagnosis: Mild lumbar spondylosis
Previously told Mechanical Back 'Issues'. Hate this term!
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Joined: Jan 2008
Posts: 21,346 Likes: 2
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346 Likes: 2 |
when i read this, all i can see is, "My rheumy *finally* decided to move me to Simponi" and all i can think is  and i sure hope it gives you the relief you deserve!
sue
Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
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Joined: Feb 2010
Posts: 2,190
Major_AS_Kicker
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Major_AS_Kicker
Joined: Feb 2010
Posts: 2,190 |
Megan, I did the same thing with my second Humira shot that I gave to my on vacation. I called Humira and they sent me a pack of 2 pens. I got squirted on my leg, but I know the feeling of wanting to cry with the expense of it. Thank God for samples and nice nurses.
Donna
Cherish your yesterdays,
Dream your tomorrows,
But live your todays.
Do the very best you can
leave the rest to God.
God Bless,
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Joined: Sep 2009
Posts: 1,236
Copper_AS_Kicker
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Copper_AS_Kicker
Joined: Sep 2009
Posts: 1,236 |
Now I know: never look at the barrel of a loaded syringe! I hope the Simponi works. How are you feeling otherwise?
Micki
Mom to 9
Dx'ed Ocular Herpes, Sept. '08
Dx'ed AS May '09, suffering on and off since 1979
Dx'ed Non-Hodgkins Lymphoma May '08, relapse Oct '11
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Joined: Nov 2001
Posts: 18,187 Likes: 7
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Nov 2001
Posts: 18,187 Likes: 7 |
Meggie, you take the cake, that's for damned sure!! There are so many smart aleck remarks that I could say, that I can't think of one!! You're just lucky that the syringe wasn't full of indelible ink! Glad they got you a new one. I hope it helps you. Love and hugs,
Kat
A life lived in fear is a life half lived.
"Strictly Ballroom"
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