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Oct 6th, 2025
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Joined: Jan 2006
Posts: 3,016
Imperial_AS_Kicker
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Imperial_AS_Kicker
Joined: Jan 2006
Posts: 3,016 |
Hang in there Jeff. You are doing all the right things. Hopefully the Pred. will get you through this tough ride. This AS monster is one constant emotional rollercoaster ride. Did you enjoy the concert anyway? Sometimes pushing ourselves to continue to get out there helps us through the tough parts. Then there's times we can't get out there and we just have to be gentle with ourselves. Sending you hugs
Cindy
" That which does not kill me only makes me stronger"
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Joined: Nov 2008
Posts: 646
Master_Sergeant_AS_Kicker
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Master_Sergeant_AS_Kicker
Joined: Nov 2008
Posts: 646 |
Hey Jeff.I know that feeling you are telling us.Some days i just want to stay in bed because i know when i get up i have a whole day of going through the pain all over again.Wish i had something to tell you that would help..but i dont,but want you to know your not alone bud.Just remember your profile statement.
"I can not defeat you but I will not let you win"
All the best to you
John
 Happy Trails To You Until We Meet Again
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Joined: Nov 2007
Posts: 6,269
Addicted_to_AS_Kickin
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Addicted_to_AS_Kickin
Joined: Nov 2007
Posts: 6,269 |
Oh Jeffrey...  I'm so sorry you're having such a rough time...give yourself a much deserved break, don't feel obligated to entertain everyone...that'll do you in every time, I know it's hard to say no to people we care about, but you have to consider the personal cost to yourself...
Age 7- Kidney Necrosis Age 11-Bursitis Age 14-Costo Age 17-Psoriasis Age 32-Thoracic Outlet Syndrome Age 33-Sacroilitis Age 35-Interstitial Cystitis Age 40-AS Age 44-Fibro Age 44-PsA Age 45-MS Age 46-Sjogrens Age 46-Raynauds Age 47-PF  
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Joined: Sep 2009
Posts: 1,236
Copper_AS_Kicker
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Copper_AS_Kicker
Joined: Sep 2009
Posts: 1,236 |
Yeah, Quit the entertaining and focus on taking care of yourself. Hope you feel better soon.
Micki
Mom to 9
Dx'ed Ocular Herpes, Sept. '08
Dx'ed AS May '09, suffering on and off since 1979
Dx'ed Non-Hodgkins Lymphoma May '08, relapse Oct '11
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Joined: Mar 2010
Posts: 132
Journeyman_AS_Kicker
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Journeyman_AS_Kicker
Joined: Mar 2010
Posts: 132 |
Hi Jeff , Sorry to hear your feeling pain and the rest of the blues that go with AS and Fibro. I hope the pred kicks in soon
and you feel better.
hugz
Noelene
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Joined: Nov 2008
Posts: 1,970
Captain_AS_Kicker
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OP
Captain_AS_Kicker
Joined: Nov 2008
Posts: 1,970 |
THANK YOU everyone.
All your posts really helped me get through this rough patch. As Lath said... I was tired. Took the last dose of prednisone today and was able to make it through the day. Today felt like the second day after getting through the flu. The concert was great and went REALLY late...you know 10:30. The place was a "dive" that had 3 floors of music that plays and headlines death metal or speed metal or whatever you call it, so Ryan Bingham was a departure to the kinds of bands that play there. Our entrance was on the side, the sidewalk was never salted... a good place to go sledding. I thought I was going to kill myself. That walk alone took a lot out of me. Got to use the guarded "no exit" doors leaving when I told them my car was right out side the door and there was no way I could make it up their sidewalk without possibly falling.(I was nice about it and so were they) Seem to be doing better now with 2 extra pain pills in the evenings. Seems no matter what you do and how you prepare you still end up paying for it. Back up dusting myself off till the next time!!!
Can't say thank you enough to all of you here.
I can not defeat you but I will not let you win
Jeff
Degenrative disc disease 2005
AS 2008 HLA-B27-
Fibromyalgia 2010
Disability 2012
Back to work part time 2013
Enbrel, Cymbalta,Oxycodone, blah blah blah blah
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Joined: Mar 2002
Posts: 9,552 Likes: 10
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Joined: Mar 2002
Posts: 9,552 Likes: 10 |
Hello Jeff,
Hope you can find a better place. Disease has its ups and downs, so hopefully turns around soon for you.
Hope you enjoyed the concert.
If I recall you live in Fond du Lac, so hopefully you enjoyed Super Bowl as much as I did.
Tim
AS may win some battles, but I will win the war.
KONK - Keep ON Kicking
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Joined: Jan 2008
Posts: 21,346 Likes: 2
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346 Likes: 2 |
glad you are recovering! sorry you had such a bad spell 
sue
Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
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Joined: Nov 2007
Posts: 6,269
Addicted_to_AS_Kickin
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Addicted_to_AS_Kickin
Joined: Nov 2007
Posts: 6,269 |
I'm so glad to hear that you're feeling better, Jeffrey...I know that when pain levels are very high, it's hard to remember that there are better days ahead, sometimes it seems like it'll never end...
Age 7- Kidney Necrosis Age 11-Bursitis Age 14-Costo Age 17-Psoriasis Age 32-Thoracic Outlet Syndrome Age 33-Sacroilitis Age 35-Interstitial Cystitis Age 40-AS Age 44-Fibro Age 44-PsA Age 45-MS Age 46-Sjogrens Age 46-Raynauds Age 47-PF
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