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Oct 6th, 2025
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Joined: Sep 2009
Posts: 1,236
Copper_AS_Kicker
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OP
Copper_AS_Kicker
Joined: Sep 2009
Posts: 1,236 |
Since my bone scan showed no activity, except in my right shoulder, where there is OA, my rheumatologist is of the opinion that my achilles heel pain and swelling and my rib pain at night is NOT related to the AS and I should see my PCP.
I had my disability hearing and because of the notes this rheumy has made in my files and the idiot doctor at the hearing, my lawyer is going to have to come up with a seriously awesome brief for me to get SSI. I just want to cry. 2 weeks ago everything seemed to be falling into place; today everything sees to be falling apart.
Micki
Mom to 9
Dx'ed Ocular Herpes, Sept. '08
Dx'ed AS May '09, suffering on and off since 1979
Dx'ed Non-Hodgkins Lymphoma May '08, relapse Oct '11
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Joined: Aug 2011
Posts: 501
Veteran_AS_Kicker
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Veteran_AS_Kicker
Joined: Aug 2011
Posts: 501 |
I am sending hugs
Hugs
friends
KickAS member since 04/22/06
Psoriasis(72), AS(2006), PsA with Spondylitis(2011),Vitiligo (69), sleep apnea (2004), Bronchial Asthma, many allergies, anaphylaxis allergy to sulfites, diabetic, Vitamin D deficient - Celiac/fructose intolerance/malabsorption - many co-morbidities
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Joined: Sep 2009
Posts: 1,236
Copper_AS_Kicker
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OP
Copper_AS_Kicker
Joined: Sep 2009
Posts: 1,236 |
Thanks. I needed that. 
Micki
Mom to 9
Dx'ed Ocular Herpes, Sept. '08
Dx'ed AS May '09, suffering on and off since 1979
Dx'ed Non-Hodgkins Lymphoma May '08, relapse Oct '11
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Joined: Nov 2003
Posts: 8,190
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Nov 2003
Posts: 8,190 |
BIG HUGS! Im sorry and Im here if you need me! Hugs! 
Speak kindly, Live simply, Care deeply, Love generously, and BLAH, HA, HA, LOUDLY! every chance you get.
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Joined: Sep 2009
Posts: 1,236
Copper_AS_Kicker
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OP
Copper_AS_Kicker
Joined: Sep 2009
Posts: 1,236 |
Micki
Mom to 9
Dx'ed Ocular Herpes, Sept. '08
Dx'ed AS May '09, suffering on and off since 1979
Dx'ed Non-Hodgkins Lymphoma May '08, relapse Oct '11
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Joined: May 2002
Posts: 2,370
Colonel_AS_Kicker
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Colonel_AS_Kicker
Joined: May 2002
Posts: 2,370 |
BIG HUGS Micki xo
Hope things work out for the better
Sherri
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Joined: Sep 2001
Posts: 8,397
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Sep 2001
Posts: 8,397 |
Micki,
I am praying for alittle miracle to ocme your way.
YOu might appeal to the Dr. again and ask for a reconsideration??
we care about you!
Lon
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Joined: Jan 2008
Posts: 21,346 Likes: 2
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346 Likes: 2 |
so sorry  had a rheumy that i felt was spending more time trying to prove that i just had OA in my SI joint and a little bit of tendonitis elsewhere. wasn't helping me. wouldn't prescribe drugs. etc. tried for 2 years to work with him. but in the end, moving on was the best decision. not that that will help short term. but maybe finding another rheumatologist will help longterm. i know how frustrating all of this can be.
sue
Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
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Joined: Sep 2009
Posts: 1,236
Copper_AS_Kicker
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OP
Copper_AS_Kicker
Joined: Sep 2009
Posts: 1,236 |
Thanks, Sherri. I appreciate it.
Micki
Mom to 9
Dx'ed Ocular Herpes, Sept. '08
Dx'ed AS May '09, suffering on and off since 1979
Dx'ed Non-Hodgkins Lymphoma May '08, relapse Oct '11
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Joined: Sep 2009
Posts: 1,236
Copper_AS_Kicker
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OP
Copper_AS_Kicker
Joined: Sep 2009
Posts: 1,236 |
Thanks, Lon. I'm taking the night off and watch some TV. I'll ask the Holy spirit to guide me for the next step.
Micki
Mom to 9
Dx'ed Ocular Herpes, Sept. '08
Dx'ed AS May '09, suffering on and off since 1979
Dx'ed Non-Hodgkins Lymphoma May '08, relapse Oct '11
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