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Joined: Jan 2009
Posts: 322
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Fourth_Degree_AS_Kicker
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Fourth_Degree_AS_Kicker
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Posts: 322
Hi Valsmum,
Thanks so much. I appreciate you checking for me. I will also go to the roadback site. Trying to figure all this out is quite the puzzle!!!
Laurie

Joined: Feb 2006
Posts: 1,483
Silver_AS_Kicker
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Silver_AS_Kicker
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Posts: 1,483
Laurie

here is the group I followed for awhile. It is focused on MS so I quit after awhile though.


http://health.dir.groups.yahoo.com/group...c=dir&slk=1


No families take so little medicine as those of doctors, except those of apothecaries.

Oliver Wendell Holmes
Joined: Jan 2008
Posts: 21,346
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Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
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i do not remember, but then again, i don't have issues with starch.

reading the LDN website just now, reading a suggestion to use either lactose or sucrose as filler, depending if one is lactose sensitive or not.

if i were you, i'd get the script from the doctor, then see if someone like Skip's Pharmacy (suggested on the LDN site) could fill it for you with something like sucrose as a filler.

or call around locally and find a compounding pharmacist who will take your concerns seriously.

someone who says "oh, that shouldn't be a problem." is clearly not listening to you. this is not a theoretically discussion on what should and shouldn't be a problem. this is a real discussion on trying to figure out what IS the problem.

stay strong! and be politely persistent! heart

Last edited by Sue22; 05/28/12 04:49 PM.


sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
Joined: Feb 2010
Posts: 1,046
Iron_AS_Kicker
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Iron_AS_Kicker
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sucrose sounds better than lactose as a filler, lactose can be similar to starch for those of us who don't digest it efficiently

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Fourth_Degree_AS_Kicker
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Fourth_Degree_AS_Kicker
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ok thank you. We will ask the doctor for LDN with sucrose. Hopefully that will work.

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Fourth_Degree_AS_Kicker
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Fourth_Degree_AS_Kicker
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Thanks again Sue. I will call Skipps Pharm and talk to them.

Joined: Jan 2009
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Fourth_Degree_AS_Kicker
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Fourth_Degree_AS_Kicker
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Thanks drizzit,
I'll check out that site. Great input!!

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