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Joined: Jan 2008
Posts: 21,346 Likes: 2
Very_Addicted_to_AS_Kickin
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OP
Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346 Likes: 2 |
I'd vote against steroid cream too - for that thinning reason. I'd probably go for something quite thick and gunky and oily (to really get into that dry flaky stuff), but if there are raw patches you might need to watch what you put on.
not sure what sudacreme is, but it might be largely cetamacrogol - thats a really basic cream that my GP recommended years ago - its what they use a a "base" for other things, but its actually quite simple and good on its own. You might need to ask at a compounding pharmacy, because it isn't high tech enough to be a branded item.
Here, I'd go and talk to a pharmacist about that kind of thing and see what they recommended. Is that something you could do in the US? thanks for the info on the steroid cream, had forgotten that. thick and gunky: eucerin may be as good as it gets. its a thick emollient. Water, Petrolatum, Mineral Oil, Ceresin, Lanolin Alcohol, Methylchloroisothiazolinone, Methylisothiazolinone. if something is very raw, eucerin is one of the few things that doesn't cause pain. even aloe can be painful on something raw. yes, good idea; will ask my compounding pharmacist as well. he's the one that recommended the KIP gel to me. he's very knowledgeable.
sue
Spondyloarthropathy, HLAB27 negative Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.) LDN/zanaflex/flector patches over SI/ice vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K. chiro walk, bike no dairy (casein sensitivity), limited eggs, limited yeast (bread)
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Joined: Jan 2008
Posts: 21,346 Likes: 2
Very_Addicted_to_AS_Kickin
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OP
Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346 Likes: 2 |
Steroid cream is what all doctors will give you. But, the stuff thins the skin. I use sudacrme and also aloe-vera cream and Hirondel cream. Sudacreme is not available in the US (English product - brilliant. And also great for treating 'scratches' on horses). thanks molly, think you were the one to warn about the thinning skin from steroid cremes in the past. been using aloe and eucerin. from this thread, sounds like i'm probably doing the best i can with it. though wondering if vitamin E capsules wold help?
sue
Spondyloarthropathy, HLAB27 negative Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.) LDN/zanaflex/flector patches over SI/ice vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K. chiro walk, bike no dairy (casein sensitivity), limited eggs, limited yeast (bread)
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Joined: Sep 2004
Posts: 433 Likes: 1
Black_Belt_AS_Kicker
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Black_Belt_AS_Kicker
Joined: Sep 2004
Posts: 433 Likes: 1 |
Steroid cream is what all doctors will give you. But, the stuff thins the skin. I use sudacrme and also aloe-vera cream and Hirondel cream. Sudacreme is not available in the US (English product - brilliant. And also great for treating 'scratches' on horses). thanks molly, think you were the one to warn about the thinning skin from steroid cremes in the past. been using aloe and eucerin. from this thread, sounds like i'm probably doing the best i can with it. though wondering if vitamin E capsules wold help? I can't vouch for the product, but sudocrem is available in the US: http://www.amazon.com/s/?ie=UTF8&key...sl_776zwfxcoo_e
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Joined: Jan 2008
Posts: 21,346 Likes: 2
Very_Addicted_to_AS_Kickin
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OP
Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346 Likes: 2 |
thanks stormy 
sue
Spondyloarthropathy, HLAB27 negative Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.) LDN/zanaflex/flector patches over SI/ice vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K. chiro walk, bike no dairy (casein sensitivity), limited eggs, limited yeast (bread)
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Joined: Jan 2004
Posts: 9,848 Likes: 6
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2004
Posts: 9,848 Likes: 6 |
That led to a great site: BritsSuperstore - international delivery. All kinds of goodies, including my fave Sudocrem (have a very nasty invert psoriasis, Sudocrem helps. Terrif.)
cemc gave you the ingredients in the Sudocrem, so, IF looks OK, then can give it a try. Can never say what one is going to react to, and each is so different from the other...
Hope you can sort Sue.
MollyC1i - Riding OutAS
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Joined: Jan 2010
Posts: 2,105
Major_AS_Kicker
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Major_AS_Kicker
Joined: Jan 2010
Posts: 2,105 |
Sue, I've heard of folks breaking open vit E capsules and putting the oily stuff straight on skin. No sure what the result was though.
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Joined: Jan 2008
Posts: 21,346 Likes: 2
Very_Addicted_to_AS_Kickin
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OP
Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346 Likes: 2 |
thanks molly,
i think what i've taken away from this is that there's really nothing magical except maybe the steroid creme but it has the side effects, but that a bunch of the ointments are good, and that my eucerin may be as good as others. i do know when i get the touch of psoriasis around my eyelids, eyebrows or on my hips or such, that eucerin works quit well, but that stuff is scabby whereas this elbow went right down to raw skin which had never really happened too often, just when the skin over my SI freaked out one winter. but if the eucerin doesn't cut it, i'll try your suggested stuff.
sue
Spondyloarthropathy, HLAB27 negative Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.) LDN/zanaflex/flector patches over SI/ice vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K. chiro walk, bike no dairy (casein sensitivity), limited eggs, limited yeast (bread)
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Joined: Jan 2008
Posts: 21,346 Likes: 2
Very_Addicted_to_AS_Kickin
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OP
Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346 Likes: 2 |
Sue, I've heard of folks breaking open vit E capsules and putting the oily stuff straight on skin. No sure what the result was though. I know people that use it quite successfully on babies' diaper rash, so that's why i was thinking about it. i do have capsules at home to try. but the constant application of eucerin seems to be doing the trick. i think i get it on my elbows but not knees cause i use lotion on my legs after i shower every day, but really didn't lotion my arms much; now i am and that's helping.
sue
Spondyloarthropathy, HLAB27 negative Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.) LDN/zanaflex/flector patches over SI/ice vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K. chiro walk, bike no dairy (casein sensitivity), limited eggs, limited yeast (bread)
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Joined: Sep 2001
Posts: 6,248 Likes: 5
Addicted_to_AS_Kickin
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Addicted_to_AS_Kickin
Joined: Sep 2001
Posts: 6,248 Likes: 5 |
Sue here is an odd suggestion but it seems to work. THe ever lovely Diane had some issues with her skin, nothing major. A friend of ours is a vitamin D advocate and has this very cool toy.
It is a near infrared light machine. (Not its technical name, but I don't remember everything so well) Anyway in 3-4 treatments her skin was good as new in the affected area.
I have read ads about folks who offer the treatment and some sound like quackery (they read like the light fixes everything from pain to flat tires) BUT my friend offered the use of his machine not pushing the possible outcome. His machine is about $20,000.00 but he runs tanning salons. He kept it for himself because his dad had ciruclation issues that the machine helped.
If you can find the machine at a DOc or place by you it is a chnace that might give great results. I will talk to John and get the exact name of the machine and therapy when his is back from vacation.
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Joined: Jan 2004
Posts: 9,848 Likes: 6
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2004
Posts: 9,848 Likes: 6 |
Steve - Not quackery. Light is used for psoriasis. Supposed to be very efficacious. Used by many dermatologists for a variety of dermy probs. Haven't tried it myself- yet. But mine is so light anyways. Hirsh Dermatology: Ultraviolet Light Therapy www.hirshdermatology.com/uvlight.htmUltraviolet light is a safe and successful treatment option for many skin conditions including psoriasis, eczema, vitiligo, and many others. We are pleased to offer ... Photodynamic Therapy for the Dermatologist emedicine.medscape.com/article/1121517-overview - Similarto Photodynamic Therapy for the Dermatologist 1 Jun 2012 ... Overview; Mechanisms of Actions; Photosensitizers; Light Sources; Uses of Photodynamic Therapy in Dermatology; Adverse Effects and ... http://emedicine.medscape.com/article/1121517-overview
MollyC1i - Riding OutAS
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