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Joined: Sep 2001
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Addicted_to_AS_Kickin
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Addicted_to_AS_Kickin
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Molly I didn't mean to infer in any way its quackery. Its is working wonders for Diane along with some sort of ultraviolet light. Its just that like any tool given to mankind. Some folks turn something beneficial into a scam by advertising it as a panacea. I have seen ads with machines that clearly are insufficient claiming to fix all.

THe right machine with the right person using it and advising you can be very effective as Diane has found out.




L-R: Julianna, Jamie, Diane and Tonimarie

stevec-they also serve who stand and wait
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Sue22 Offline OP
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
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molly and steve,

i think i can clear up the "quackery thing" a bit.

the real thing is not quackery and as you said, does work for a number of medical conditions; have considered it myself for things, the enthesitis i think.

however, i've also seen these things advertised for next to nothing. but upon closer inspection, its not the real deal, and thus these impostors are "quackery".

my chiro and i have talked about this; he gave me the details on what exactly to look for to make sure its the real thing.

maybe what i'm thinking of is not exactly the same light, but still the distinction between the real thing and a cheap imitation may apply.

never thought about the light for the skin stuff; thanks for the suggestion.



sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
Joined: Jan 2008
Posts: 21,346
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Sue22 Offline OP
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
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started using udder cream (utterly smooth brand) last night. things seemed to take a dramatic turn for the better today.

coincidence?

i googled udder cream and psoriasis and found a psoriasis forum where they were discussing udder cream favorably.

someone also mentioned eucerin.

so, i guess there's no big secret weapon out there. rather a number of things that work to some extent.


udder creams main ingredient is allantoin then dimethicone then lanolin oil.



sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
Joined: Jan 2004
Posts: 9,848
Likes: 6
Very_Addicted_to_AS_Kickin
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Good heavens, yes. Remember a chum talking about udder cream, years ago. Can't remember what she used it for. (Wonder IF they have it in France...? Probably not!) Will see if I can still get from UK. Good one Sue. Though Sudocrem is very good indeed. But nowt like having a good arsenal of creams to fight the ole dermy problems!


MollyC1i - Riding OutAS
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Supreme_AS_Kicker
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Supreme_AS_Kicker
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Just read this thread. I swear by my Gold Bond 'Healing w/Aloe, w/vit A,C, &E.' I like the pump dispenser, too. Finally found a smaller tube version that fits in my lab coat pocket at work. When you wash hands 10-20 times in 8 hrs, dry skin is a problem.

I have P on the elbows. If I can keep the elbows moisturized, maybe the P won't return as quickly. If it comes back, I slather on the triamcinolone steroid cream to knock it back, then stop the steroid when the skin heals. Hope it doesn't thin out the skin if I only use it when the P is flaring. And maybe the Simponi will help the P along with the PsA. (almost time for 4th injection!)


DX: Psoriatic Arthritis, Osteoporosis, Psoriasis
Meds: MTX since Oct 2009, 15mg/week. Cimzia-restarted after 2 yrs away.
Epidural Steroid Injections x8; Lumbar Radiofreq Ablation x2
SIJ Steroid Injection x3; Bilateral Radiofreq Ablation SIJ x9
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Sue22 Offline OP
Very_Addicted_to_AS_Kickin
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i have a small tin of pure shea butter in my purse for every time i wash my hands. i have no idea how others wash their hands without needing moisturizer every single time. i could never.......

in the lab, the stockroom carries or at least carried (they're always removing something from the inventory) a very nice cream from VWR, softguard. doesn't say what's in it, but the way it forms a barrier, think it contains dimethicone like the udder cream; that's what it feels like.

as for the P on your elbows, think the simponi should help. my elbows were great while on the methylpred. now the left one is going through a bit of a rough patch; but it usually doesn't last too long. just gotta keep it lathered up.



sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
Joined: Jan 2009
Posts: 4,501
Likes: 1
Supreme_AS_Kicker
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Supreme_AS_Kicker
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Some inspectors from the hospital came through the lab a few months ago and objected to the pump bottles of lotion/cream that sat by the big sinks in chemistry, hematology, micro and immunology. Mostly they were 'donations' by various people who were tired of dry hands. We took turns bringing in bottles (that's how I learned of the Gold Bond lotion.) to use since the hospital never would put up a dispenser on the wall by the soap dispenser. There are some scattered through the hospital, just not on our floor or in the lab. So the inspectors made the lab director remove the bottles and we have to keep our lotion in our lockers or lab coat pockets now. <sigh> My next tube/bottle will be the udder cream.

And the lab will be moving out of the hospital in a few months. There will still be an inpatient lab, but most of the non-stat testing will be done at the new location. I haven't decided which part I'll be working in since there haven't been any specifics given as to what sort of hours the shifts will be in the new lab. I'd like to get on days where I'm home by 7 or 8pm. Hubby would be so much more happy. And maybe we could get lotion on the sink counter without ruffling mgmt's feathers.

I'm hoping the P stays gone with the Simponi. 4th shot next week--the day before my trip. Only 10 more days. Woohoo.


DX: Psoriatic Arthritis, Osteoporosis, Psoriasis
Meds: MTX since Oct 2009, 15mg/week. Cimzia-restarted after 2 yrs away.
Epidural Steroid Injections x8; Lumbar Radiofreq Ablation x2
SIJ Steroid Injection x3; Bilateral Radiofreq Ablation SIJ x9
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