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Joined: Jan 2009
Posts: 4,501 Likes: 1
Supreme_AS_Kicker
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OP
Supreme_AS_Kicker
Joined: Jan 2009
Posts: 4,501 Likes: 1 |
I just returned home from a trip-of-a-lifetime. A cruise of the Inside Passage of Alaska, followed by a land portion including Denali National Park and Fairbanks. Total of 12 days of travel. So very tired, but in awe of God's beautiful world. Traveled with my mom (age 77) and a friend (age 66), all in a balcony stateroom. Extended group of 26 people from a travel group my mom belongs to. I took a shot of Simponi the morning I left, then started prednisone the next day, with blessings of rheumy. Had to take as high as 30mg/day to keep me going, but it was worth it to be able to abuse my body in so many ways.  Everything from sedate walking/gawking/photo-taking/shopping to whale-watching/hiking/glacier-watching/train-riding to zip-lining.  Today is first full day at home and I'm down to 20mg. Dropping 5mg/day on rheumy's orders and hope to be off this weekend. Back to work tomorrow. AND, I lost 2 pounds while I was gone!!! Only bummer part--my mom had a cold early in the trip, which I caught. So far, it's not been bad, but I still have a little feeling of movement (like I'm still on the ship) and I got off last Saturday. Maybe ears are stopped up too much? If it's not better soon, may have to visit PCP. Now if I could just get used to the 3-hour time difference again. Traveling West is such a PITA.
DX: Psoriatic Arthritis, Osteoporosis, Psoriasis
Meds: MTX since Oct 2009, 15mg/week. Cimzia-restarted after 2 yrs away.
Epidural Steroid Injections x8; Lumbar Radiofreq Ablation x2
SIJ Steroid Injection x3; Bilateral Radiofreq Ablation SIJ x9
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Joined: Sep 2001
Posts: 8,397
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Sep 2001
Posts: 8,397 |
rumble,
wow
I am happy for you!
We missed you! but it sounds wonderful!!!
I keep the New Covenant,
when I fail....I am pulled
back into place by HIM.
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Joined: Mar 2002
Posts: 9,552 Likes: 10
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Joined: Mar 2002
Posts: 9,552 Likes: 10 |
Hello Rumble,
Glad to hear you enjoyed the trip, my parents went to Denali and loved it.
Keep on Kicking!
Tim
AS may win some battles, but I will win the war.
KONK - Keep ON Kicking
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Joined: Jul 2010
Posts: 1,191
Steel_AS_Kicker
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Steel_AS_Kicker
Joined: Jul 2010
Posts: 1,191 |
I am so glad you had a nice time. It sounded like you had fun!!
I worked in Alaska for a summer and I thought it was really beautiful.It was weird how late the sun was out. I saw some guy mowing his lawn at 9pm, funny.
I loved how the ocean met the cliffs, that was my favorite place or scenary.
Hope coming off the steroids isnt too hardbfor you. I've been stuck at 7mg prednisone for awhile now, my knees swell up so much without the stuff. I keep hoping I can get off the steroids so I don't have some bad side effect.
Diet change has improved my RA. I feel best eating raw veggies and some fruits and avoiding grains, sugars, nightshades, beans and dairy. Sed rate dropped from 65 to 19, but it took over a year. www.fatsickandnearlydead.com excess fat/oils = pain for me recipes for raw food on Youtube "raw food romance" and "healing josephine" Josephine is in remission from RA after two years by change diet/exercise
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Joined: Feb 2010
Posts: 2,190
Major_AS_Kicker
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Major_AS_Kicker
Joined: Feb 2010
Posts: 2,190 |
That trip sounds like a dream come true.
Donna
Cherish your yesterdays,
Dream your tomorrows,
But live your todays.
Do the very best you can
leave the rest to God.
God Bless,
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Joined: Jan 2008
Posts: 21,346 Likes: 2
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346 Likes: 2 |
That sounds so wonderful!
Glad you had the drugs to enable you to do what you wanted to do.
Be careful being sick and on pred. My GP wants me to get a s. pneumoniae and flu shot because i take methylpred a few times a year and hadn't realized i was more susceptible to germies while on pred. But i'm sure you already know all of this, considering your line of work and all.
sue
Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
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Joined: Nov 2002
Posts: 6,928 Likes: 3
Addicted_to_AS_Kickin
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Addicted_to_AS_Kickin
Joined: Nov 2002
Posts: 6,928 Likes: 3 |
I am so glad you got to make that trip. I am also happy for you that your dr. helped you.
My sister and her husband made that trip last year. They had planned it for years and they went and got back about a month before he died of pancreatic cancer. It was a trip of a lifetime for them.
Did you fly fish? My sister said the water was so cold but they had so much fun.
Take care of yourself with that cold. Get some rest.
Hugs.
Possi
![[Linked Image]](https://www.kickas.org/images/flowers/Smilingsun.gif) Possi ********************************************************* RUN WHEN YOU CAN, WALK IF YOU HAVE TO, CRAWL IF YOU MUST, JUST NEVER EVER GIVE UP! "A FRIEND HEARS THE SONG IN YOUR HEART AND SINGS IT TO YOU WHEN YOU CAN'T REMEMBER THE WORDS." "A FRIEND LOOKS THROUGH YOUR BROKEN FENCE TO ADMIRE YOUR FLOWERS."
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Joined: Dec 2003
Posts: 1,368
Bronze_AS_Kicker
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Bronze_AS_Kicker
Joined: Dec 2003
Posts: 1,368 |
Hi There,
Glad you had a great trip. We are sailing Dec 1st the Princess southern Caribbean. I asked my rheumy this week if I could try some steroids for my trip and he flatly said No way. I have had all the negative effects of steroids, so I understand why he won't do it. I am glad they worked for you and hopefully don't cuase permanent damage . I deveoped cataracts, diabetes, and neuropathy, so it is no more steroids for me.
Janet
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Joined: Jan 2009
Posts: 4,501 Likes: 1
Supreme_AS_Kicker
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OP
Supreme_AS_Kicker
Joined: Jan 2009
Posts: 4,501 Likes: 1 |
Came home from work last night with a 100.5 degree temp. Went to PCP this morning and got rx for Augmentin for a sinus infection. Dizzy from ears and I guess I'll have to call in sick on my 2nd day back. I'm scheduled to work Saturday, so better to miss tonight (7 people working) than tomorrow when there are only 2 people working.
I haven't used steroids in over a year, so my rheumy was okay with it. I'll avoid pred now as much as I can.
Janet--hope your trip is wonderful. So far, I have no ill effects from the steroids because it's so infrequent that I use them. Hope you can control your disease a different way. I've never done steroids like this, but won't do it again unless it's an equally special occasion.
Joyce--we didn't fly fish, but I abused my body in numerous other ways while taking steroids. I've never seen such huge expanses of beautiful scenery as there were in Alaska.
Sue--I'm pretty sick now and it was likely worse earlier, but masked by the steroids. As the dose came down (10mg today), the symptoms got worse. My mom was sick the 2nd and 3rd days of the trip, but she got better quickly. I mistakenly thought I escaped the worst of it...<sigh>
Valsmom--This was like a long taper rather than a long-term dose. I took between 20 and 30mg/day till the last couple of days when we were heading home (no active sight-seeing/activities). This time of year had around 12 hrs of daylight in the southern part and somewhat less up around Fairbanks. We were just happy that the weather was so good.
DX: Psoriatic Arthritis, Osteoporosis, Psoriasis
Meds: MTX since Oct 2009, 15mg/week. Cimzia-restarted after 2 yrs away.
Epidural Steroid Injections x8; Lumbar Radiofreq Ablation x2
SIJ Steroid Injection x3; Bilateral Radiofreq Ablation SIJ x9
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Joined: Feb 2011
Posts: 1,968
Captain_AS_Kicker
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Captain_AS_Kicker
Joined: Feb 2011
Posts: 1,968 |
Rumble,
You went to hard and played too hard but you know what! It was worth it huh? Zip-lined!! You go girl! Sorry you caught a nasty cold. They say if it is on a boat, everyone get's it. Hope you are back to your ole self soon. Jet lag does suck!
Pea
Diagnosed with A.S. 29 year's ago.
Diagnosed with Fibro 10 year's ago.
Remicade, Intrathecal Pain Pump 2013
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