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Joined: Jun 2011
Posts: 343
gilth Offline OP
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I'll have real problems explaining this one, but I'll try my best, and I'll try and keep it real short too, although its hard as its complicated.

I know this: At age 20, right at the end of the army, I was admitted to a field hospital (the simple kind where there were beds and not much else) during a 14 day field exercise. I had been struggling a lot with the cold for a prolonged period (it was winter) where my body felt...like achy and almost influensa-like. Then they found me in my tracked vehicle, behind the steering wheel, parked front first into a tree. It can't have been a real crash, more like it just stopped there in slow speed. The engine was on, and the tree and the vehicle were practically unharmed. I was apparently unconscious, but awoke when they touched me, screaming with an insane headache. I remember it felt like the slightest movement of the head hurt like I was going to die. The evacuation to the field hospital out of the mountain was murderous to say the least.

Once there I was admitted with a fever of 40'9 celsius (105.6 Farenheit). They did a CRP test wich apparently was unconclusive to virus or bacteria (don't ask me how they came up with that result). So they alerted a medivac helicopter, but due to my large pain when being moved hesitated to fly me to a large hospital. That helicopter was on standby alert for a 5-min liftoff the next 48 hours or so, as my fever never went up one point and never came down much. They gave me a lot of anti-fever tablets, and I was awoken every half hour as they feared coma or something.

Fever suddenly dropped right down to normal after 2 days, I was denied to smoke in the field hospital when I was on my feet, I got mad (and feeling perfectly good again, although lacking energy) and discharged myself and went back into the field. It took one day before I was right back with fever just slightly lower. This time I stayed longer, and got allowed to smoke tongue4

They concluded that I must have gotten fuelpoisoning from refilling 18 tracked vehicles the night before it started manually from jerry cans. I am not sloppy, I did not spill anything. Fumes? -possibly.

14 days later I was on a flight home. I remember having more truble than normal equalising pressure in the ears during take-off and gaining altitude, butr quickly fell asleep as was my custom on flights. I find them relaxing. Next thing I know I wake up and I for some reason cant really feel myself breath, even when I try to. Sure, I see my chest moving, if I put my hand in front of my face I feel the air, but I cannot for the life of me feel the motion in my chest. I get startled and look around me to see if anyone is struggling to breath, noone does, so it's not the plane oxygen. I manage to keep reasonably calm and we land just fine.

From that day I have had clicking noises in my ears. They started in the right, they have with time moved to the left as well. It's just what it sounds like...clicking. With time its developed into soreness in the ears, fullness, in periods tinnitus...you name it. My ears are a mess.

I saw one specialist about a year later, he heard me say clicking and didnt do any examination, he just told me he knew excactly what it was, he called it ear/nose syndrome or something, and said it was due to the muscles that open and close the canal from our ears to the nose being too tense, leaving the canal open when it shouldnt be and the clicking was due to the canal opening and closing. No treatment was available or effective, and "some people grow out of it in time".

During the same time I was so bothered by the breathing thing it developed into anxiety. With me it was never the fear really, it was more my body firing off a multitude of strange symptoms. If I was in a good period I was at perfect health nothing could stop me. When it was bad it was bad all day, every day, and handicapped me greatly.

I was started on anti-depression meds, and reacted terribly poorly. I got my first real panic attack from them, and the anxiety switched from what I'd then think of as moderate, but prolonged, to terribly strong attacks lasting shorter periods of time.

And my body....well it did the strangest things. One day I felt a burning feeling on my arm, and took off my shirt to see a flaming red rash appear out of nowhere all up my arm. I would feel like I lost connection with legs, or with arms. I got heat stroke twice during exercise...in moderate warmth....you name it, I got it.

I admitted myself finally to a treatment facility for anxiety and depression and they had me quit Sobril wich I had been using, and the newer kinds of anti-depression meds too. They had me try an older better tested tricyclic antidepressant, and tought me the value of a good sleep pattern, regular meals, exercise, and natural remedies for relaxation. However...it didnt really start to get a whole lot better before.....


One day I had been visiting friends back home and was driving back in my car, when I had a real killer neck pain. I was trying to massage myself, but suddenly it felt like somone had punctured my spine at the top of my neck and was puring ice cold water right into the nerves. It really felt like I was dying. my body felt numb, and it fel like my eyes were going black even though wide open. I severely panicked, but the sensation gave away over the next minutes. It was terrible. I wrote it off to having hyperventilated without noticing and almost fainting although I had never had that before.

The next few weeks were terrible. my stomach felt like it had stopped working, and I lost night vision completely. I could go out in just early evening and be practically blind. They had told me the sideffects when starting the tricyclic was severe so I thought it was that.

Then I got pneumonia. They got me on antibiotics, and the ear cliking stopped, and the anxiety and all my other problems just seemed to die out of themselves.

I was in more or less perfect health for 8 years. After a period of pushing myself far too far at work I got the same symptoms again. I ended up with Sinusitis and and antibiotics and what do you know....again I was back. Each time it actually felt like my nerves (and I'm talking about the actual nerves and sences) needed to be retrained and repaired over time before they got better, but they did.

Fast forward another 8 years or so and I landed in the same mess again. Again I got on antibiotics for sinusitis, but this time they helped my jaw joint pains greatly(!) and again the ears are much better while on them. Except after the clicking noises change from clicking to feeling like large bubbles of air hitting my ear drums from inside, and it is so sore you could not believe it. And something snaps in my head, it feels like something finally opening up, and I get a wet feeling inside the ear, like water was pouring there, and afterwards...the nerves in my body feel like somone taped them on the outsid of the skin and they are exposed to air and wind and terribly inflamed.




Wich leaves me with this:

EVERY time I have had this anxiety thing bad, my ears are REALLY at their worst too. Every time I get an antibiotic, my ears feel better and the clicking noises dissapear for a while.
It feels like it affects balance. Not as in meniere's where your world will seem to spin before the eyes, but as in standing on a ship in waves all the time, or actually dropping right down to the floor, body just collapsing. Sensation of cold/warmth/touch is affected. Sensation of the body changes. It's often like getting used to a new body each day.

But this time it hasnt gotten perfect after the antibiotic. The infection in my nose is back, although I use a neti pot every day, and my ears got bad again really fast. I have a lot of watery eyes and it feels itchy behind my eyes, the sinuses feel itchy and sore still and well... post-nasal drip etc.


I have tried to figure this out so many times. theres something that doesnt add up to let anxiety explain it all. I have known and talked to so many anxiety patients, and theirs is nothing like mine. Well except the parts where I am excacly like them but that I recognise and accept is anxiety and those symptoms I havent really mentioned here even.

Some relevant information: I had multiple sinusitis' in my late teens. They never really went away in the end. At one point something felt like it exploded in the back of my throat wich gave me the worst taste I have ever felt for 2 days after. Like a mix of metal and ....putrid something.

Later I have wondered if that was my sphenoid sinus. I know that the sphenoids are really close to the brain, could it be that my eyes got affected from the shenoid sinus infection getting through when I had night vision loss and the point where it felt like going blind/dying? I know now that loss of night vision can in no way be a sideeffect from the medicine I was taking they don't do that. And why when something feels like it opens/lets go pressure wise in my ears (and the inside of them feel wet) do my entire nerve network feel fragile/exposed/inflamed?


Any takers for a unified theory? I have always had the feeling this is something treatable, that somone messed up not checking out the real reason behind my hospitalisation back in the army. Maybe I'm wrong....but I'm not mad, and I have the papers to prove it: No personality disorder apart from anxiety (not even depression) and no paranoia either. laugh


Diagnosis:
Multiple Sclerosis
Psoriasis
Herniated disc L5/S1
Herniated disc C6/C7
bone marrow edema jaw joint
Vitamin D defficiency
Stomach ulcer
Joined: Aug 2011
Posts: 501
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Ask your doctor for MRI of your pituitary gland - adenomas can cause lots of visual and ear problems. I do not know if this is your problem but it's worth having this checked.

Hugs

Gerri & Makaylah


KickAS member since 04/22/06
Psoriasis(72), AS(2006), PsA with Spondylitis(2011),Vitiligo (69), sleep apnea (2004), Bronchial Asthma, many allergies, anaphylaxis allergy to sulfites, diabetic, Vitamin D deficient - Celiac/fructose intolerance/malabsorption - many co-morbidities
Joined: Jun 2011
Posts: 343
gilth Offline OP
Fourth_Degree_AS_Kicker
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Posts: 343
Holy smokes, Batman! -When you engage the enemy you, fire from the hip, while running casually down the street with a wicked smile on your face, don't you?

I had never even heard of that gland, or condition, but THAT is a valid theory, and far more precise than I expected!

I'm flabbergasted!

Keep'em coming people!


Diagnosis:
Multiple Sclerosis
Psoriasis
Herniated disc L5/S1
Herniated disc C6/C7
bone marrow edema jaw joint
Vitamin D defficiency
Stomach ulcer
Joined: Jan 2010
Posts: 2,105
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Worth checking I guess, but I had a cousin who had longstanding problems with a pituitary adenoma, and from what I know of what she went through with it, I definitely wouldn't have picked it as a good match with your symptoms Gilth. But, I'm not a doctor.

Joined: Dec 2003
Posts: 1,368
Bronze_AS_Kicker
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HI

I am curious to know if your taking an anti-depressent now ? My brother was put on Effexor for depression after my mom was dx with Alzeimers and he was her main care giver. Anyway he develped terrible sinus, and had a tooth removed because he had so much tooth pain. I turned out to be the antidepressent. He suffered severly with sinus infections, until he stopped the antidepressents because he didn't need them anymore and the problems all disappeared. If you look up the side effect profile of most antidepressents, alot of your symptoms could be related to them.

I also want to say that anxiety causes everything to be exagerated. I speak from my own experience. Are you getting the anxiety under control. I was getting so agoraphobic from the anxiety, but it is much better. I was put on Atenolol to slow my heart rate down a( caused by anxitey btw) . The bonus is my anxiety has improoved greatly and many other problems I had just disappeared.

Best Of Luck,

Janet

Joined: Jul 2010
Posts: 1,191
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Steel_AS_Kicker
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Have you seen the show "House". This reminds me of an episode, sorry you have been through so much. I want to help much I am not a dr. The only thing I thought of was your response to antibiotics. Have you ever been to roadback.org. It is a nonprofit message board/support group like this one.Well they all have symptoms like ours but some have ear and nose stuff and some have responded REALLY well to antibiotics to get over there joint pain, fatigue, anxiety.
I read that chronic pain can cause anxiety.


Diet change has improved my RA. I feel best eating raw veggies and some fruits and avoiding grains, sugars, nightshades, beans and dairy. Sed rate dropped from 65 to 19, but it took over a year.
www.fatsickandnearlydead.com

excess fat/oils = pain for me
recipes for raw food on Youtube "raw food romance"
and "healing josephine" Josephine is in remission from RA after two years by change diet/exercise
Joined: Dec 2003
Posts: 1,368
Bronze_AS_Kicker
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Hello

Chronic pain does cause anxitey for sure .

Janet

Joined: Jun 2011
Posts: 343
gilth Offline OP
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cemc

Well, I guess a pituitary gland adenoma could explain the insane dryness and irriation I get in periods in eyes/nose/ears...it even feels like it affects my stomach at times. Also that time with the feeling of a cold water inection right into my spine could have been an adenoma bursting. And if it can affect the eyes, thats an other thing. But I admit its strecthing it far, with no further proof. Certainly longstanding sinus problems can go to complications where it spreads to bone or brain. And the pituitary gland is from what I understand outside the blood-brain barrier, and really close to the Sphenoid sinus, wich means it could be periodic infection...but that would be insanely complicated to prove or find evidence of.

I have actually thought about allergies. This dryness always hits me in the wintertime, and it seems to relieve itself outdoors. Maybe it could be an indoor allergy? -I think allergy can cause dryness, not just excess mucus production. I haven never really considered if I am allergic, but I actually know 2 things I react very strongly too: The varnish we use on the wooden outdoor walls of the house, it gives me severe red eyes, itching, tears, itchy throat. We use a bubble bath cleaner agent for rinsing the buuble bath in our bathroom once in a while. You fill the entire tub, then pour it in and let the system cycle. It will have me choking on the floor and crawling out, it absolutely makes my chest thighten. Maybe I am i allergric to something more? -Going to ask the doctor to allergy test me at least. Not sure if that could give recurrent sinusitis/rhinitis?

Janet

I do, I take a tricyclic. But I am on a very low dose. (about 1/3rd of the measured correct dose for me when I was 15kg's lighter. For all these years I have told the doctors I get some effect from that, even though they claimed it would do absolutely nothing at too low a dose. In the later years they have started using it at my dose excactly for cronic back pain, so turns out I was right all along. And yes, the anxiety finally seems to be coming under control again, I funtion a lot better the last week.

Valsmum

Yeah, I feel like an episode too sometimes, wich makes me wonder if I have munchausen or something. The thing is...that just doesnt explain the objective findings of joint pains and damage, pain pressure points, balance issues, dryness, stomach problems and so forth. So I'm pretty confident I know something is really wrong...just wish I had a better understanding of what.
You know, about the antibiotics.... In Norway longstanding antibiotic treatment is unheard of. They NEVER use it. They are so worked up about antibioticimmune bacteria they shut down all attemps to use AB's for anything not acute. It's been a huge issue in the news lately, because it turns out that the tests they do for Lyme disease here arent that good, and when they are positive they give a 14 day treatment. A lot of patients have gone to Germany to a specialist Lyme clinics, and get tested positive there when negative here. And there they put them on 6 months to a year of AB's for it.

And yes: If you read medicine litterature, there are actually hundreds of conditions that are listed as a very real cause of anxiety. Add in the thousands of medications that can possibly do the same, and doctors should be more focused on finding out if there are physical causes of anxiety than psychological ones first. Because if a patient can be helped with a physical treatment, then you may have saved a patient anxiety for the rest of his entire life.


gilth


Diagnosis:
Multiple Sclerosis
Psoriasis
Herniated disc L5/S1
Herniated disc C6/C7
bone marrow edema jaw joint
Vitamin D defficiency
Stomach ulcer
Joined: Jul 2010
Posts: 1,191
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Steel_AS_Kicker
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Gilth,
Just to be clear, I thought your story would make an interesting "House " episode. I meant that you need someone like Dr. House to figure out what is wrong with you. I don't think its in your head or you are making any of it up,I believe you . When you watch House they use that dryerase board to write down the symptoms and clues to what is wrong with the patient.
I did not respond well to long term antibiotuics for my RA,I did much worse. I tried them for a year, it was the worst ever. So glad I decided to stop them and try the diet. You might want to try this for seven days, just eat fruits and vegetables for seven days, if yu have pain, I bet you will notice on day 4 or 5 that the pain has dimished. I am weaning off my meds becasue this diet works so well. I add in meat once or twice a week. I think it cleanses the gut and the gut has alot ot do with atuoimmune diseases. Its only seven days and it might help, and if it doesn't you havet lost anything


Diet change has improved my RA. I feel best eating raw veggies and some fruits and avoiding grains, sugars, nightshades, beans and dairy. Sed rate dropped from 65 to 19, but it took over a year.
www.fatsickandnearlydead.com

excess fat/oils = pain for me
recipes for raw food on Youtube "raw food romance"
and "healing josephine" Josephine is in remission from RA after two years by change diet/exercise
Joined: Dec 2003
Posts: 1,368
Bronze_AS_Kicker
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Posts: 1,368
Hi

I take a tryclic and many others for nerve pain. I take AMitrypline 85 mg at night, and it helps my pain so much. It sure makes my mouth and eyes dry, and tons of weight gain, and tacycardia.

Janet

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