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Joined: Sep 2001
Posts: 8,397
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Sep 2001
Posts: 8,397 |
rumble-
our thoughts and prayers are with you...
tell us what is on your mind as you make this journey
agape'
Lon
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Joined: Oct 2008
Posts: 360
Fifth_Degree_AS_Kicker
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Fifth_Degree_AS_Kicker
Joined: Oct 2008
Posts: 360 |
God I'd be so happy with feeling good 2/3rds of the month. I just took my first monster dose of humira(the initial crohns dose, got switched from the arhritis dose with maybe just maybe it will help)(and exercised like crazy for the first couple of days) but should have probably exercised like crazy all week to see if it was really gonna work on not(sadly I doubt it will, last time I took a steroid pack them suckers worked right away and were really potent and initially when the humira worked it took like 4 days after my first shot and it had kicked in). I noticed it helped my bleeding a bit with my colitis this time(pretty much immediately) but didn't notice one tiny bit for my arthritis :((the tnf blocker that is) I wonder if switching would actually help but what has been my expierence is when one tnf blocker starts to stop working they all lose that initial miracle effect. GL sounds like you have a good rheummy willing to help it took my rheummies nurse 3 months to get my humira approved and I had to pretty much give her the freaking case number for every prior auth, it was so bad it was almost comical. All the while I'm waiting to try a drug that I have no hope for it working but am just trying to do what is procedurally correct. That heart to heart with your doctor thing is such a beautiful idea possi I just love your posts lol I'm going to do the same.
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Joined: Nov 2002
Posts: 6,928 Likes: 3
Addicted_to_AS_Kickin
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Addicted_to_AS_Kickin
Joined: Nov 2002
Posts: 6,928 Likes: 3 |
Thank you Tnate. I too cannot imagine feeling good even a day now. I guess I feel ok in that I am not sick at the moment just in (to me) terrible pain but maybe I am in a wimpy stage. :o)
Rumble, I am glad you are pursuing treatment to help you. I couldn't tolerate the meds and that is why my back/joints have gone caput so fast after we had to stop treatment. I would encourage everyone (that can) to do anything they can to slow or hopefully someday stop progression of the disease.
![[Linked Image]](https://www.kickas.org/images/flowers/Smilingsun.gif) Possi ********************************************************* RUN WHEN YOU CAN, WALK IF YOU HAVE TO, CRAWL IF YOU MUST, JUST NEVER EVER GIVE UP! "A FRIEND HEARS THE SONG IN YOUR HEART AND SINGS IT TO YOU WHEN YOU CAN'T REMEMBER THE WORDS." "A FRIEND LOOKS THROUGH YOUR BROKEN FENCE TO ADMIRE YOUR FLOWERS."
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Joined: Jan 2008
Posts: 21,346 Likes: 2
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346 Likes: 2 |
Just wanted to pop in and say Good Luck! 
sue
Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
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Joined: Jan 2009
Posts: 4,501 Likes: 1
Supreme_AS_Kicker
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OP
Supreme_AS_Kicker
Joined: Jan 2009
Posts: 4,501 Likes: 1 |
Thanks all. Now I've got to get busy studying up on cell lines for all the various blood cells (white and red) so I can do better at doing differentials tomorrow. (cross training in hematology, which i haven't done in 8 yrs. working in chemistry all this time)
DX: Psoriatic Arthritis, Osteoporosis, Psoriasis
Meds: MTX since Oct 2009, 15mg/week. Cimzia-restarted after 2 yrs away.
Epidural Steroid Injections x8; Lumbar Radiofreq Ablation x2
SIJ Steroid Injection x3; Bilateral Radiofreq Ablation SIJ x9
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