Kickas.org Forums Ankylosing Spondylitis General Discussion #1 AS Web Support Group ESR & CRP

Hello, Joe:

My ESR was >100 at times, but most often >40 even when taking NSAIDs (which I did too much of...).

Through diet and fasting I was able to get it down to 28, 19, and after key antibiotics combined with diet the ESR looms between 1 and 9 despite my advanced age (ESR allowed up to 15).

Medication cannot completely stop inflammation. NSAIDs can take the top 25% off--that makes us most aware of the pain, but that pain was for the purpose of telling us that damage is taking place; it still happens at only slightly slowed rate if taking NSAIDs.

Sorry don't know about marijuana, but I do know that AS is much more about what our bodies don't need than what they do; no pill will ever reverse our lifestyle choices.

HEALTH,
John

Hi Joe,

When I was diagnosed, I had been in flare for well over a year. I was in agony most of the time, couldn't sleep because of spasms awaking me in the night, it was awful. My ESR was only 28 and my CRP was about a 10. My rheumy at the time told me that 'elevated' depends on the doctor. For him, anything up to 10 on CRP was normal. I no longer keep track of these numbers because I know I am one of those whose numbers don't elevate much, no matter what kind of pain I'm in.

When I was diagnosed, there were people here with ESR up around 140!! At first, I wondered what I was complaining about. I knew what my pain levels were at a 28, so theirs must be horrific. Then I learned that numbers are just numbers and you cannot compare two cases. What is horrific for me might be normal for someone else and vice versa.

I don't know if that helps.

Warm hugs,

Dear John...
What are you talking about in your response to Joe?

" despite my advanced age (ESR allowed up to 15)"
Aren't we the same age?

B'rer Lon!



Yeah if that is somewhere between old enough to know better and too old to care.

We don't talk about "age," but count in epochs and eras now; somewhere between sedimentary and pliocene...

Things are good here in Philippines especially when the power is on at same time as internet!

I'll try getting up to see Ya when we get back Septemberish...this year I think...

Lupus Infabula

My ESR and CRP were always around borderline high normal. Now on Humira, for ~2 years, they haven't changed much.

The thing I worry about is pain. Pain is what keeps me from functioning and living a life worth living.

I don't like pain. And so that is the enemy I am daily in battle with. The other stuff, I don't really care about. For me, pain is my red flag.

Mine was high like you after I started to take Auyvedic medicine it came back to normal and is stable since last 2 m8nths. I was suggested to take 'ruhmatil' and its an wonder drug for me. No side effect and I m now free and cycling!