Kickas.org Forums Ankylosing Spondylitis General Discussion Friends and Family Support Group What is wrong with me?

Beloved-
We drove 700 miles, and had a wonderful thanks giving. We played in the very cold Madison snow, walked on icy sidewalks and laughed, played games and listen to the kids sing. I wish all were as blessed as me.
I knew I would be having some starch, yea I know a weakness on my part. So I did eat and snack with the kids. Now I am very stiff and in pain with the swollen "wheat stomach". But already I have been active in getting wood and looking for things in the pu. THAT are supposed to be there. I had a bit of new snow on the drive and the deck to move.
I intend on getting back to walking the river current soon.

How is it with you? I still love this place.
Lon

Is that very cold Madison snow colder than that very cold Wyoming snow?
And are you planning to walk the river current during winter?!

cold is cold, it seems a bit more humidity in WI.

I should explain- the river current...is the warm current in the pool at the rec. center. It flows about 3 mph, which adds up after 20 minutes...

did you do well, are you feeling well?

I am back to driving and doing well, even remembering some addresses.

I see a few are still reading.
A swollen and growing spleen is one of the added issues to my health. Yeah each day is a battle, as you well know. I can go a few weeks with no starch and reduce the swelling in my gut, but any little bit of starch seems to put me in worse shape than when I started NSD.
I would have never thought that a person could be in this much pain. I am choosing to work part time, taking pain meds.

How is it with you?
Years ago I took some of the big guns, but always had the brain thing doing so I dropped them.

these days I can barely squeeze the clutch in on my Harley. for those of you who are much more fused than I; I just don't know if I would feel better if the old bod would just give in and fuse.....

I refused the $430 pain patch prescription this week.

thanks for reading. Let me know if you need to talk.
Go Warriors!!!!

Well it's about time they found something is wrong with you--but is the spleen a new thing or old thing? I know a few who've had spleens removed and seem to have gotten along fine without it. Maybe it's cause for a few problems you may get solved. We care about your saga in this thread because AS has so many kindred diseases.

Life is a struggle, but we are still here to accomplish something and cheer each other on. Even with the pain and medical issues, I've known so many worse off (as have you I'm sure in your work). You are still doing good works with your part-time job w/ex-cons. Saw 2 moose yesterday--made me smile!

Snow-the Moose= always make me smile! They just look goofy!
Thanks for the uplift. You are good at that!
Any recentproceedures?
I hope they take the spleen, cause it is really starting to be uncomfortable.
But I have been referrred to an oncologist as well.

Lin and I are enjoying the grandkids. redheads!!!!

love ya
Lon

Well today the alpine wildflowers made me smile. I hope you go get to sit and wildflower watch. Have the drs decided what to do with you???

Snow- my dear friend- they have decided to let me live, for the time being! They can not figure out the blood work, without an actual infection, or the swelling....
I have not gone to the mountains once this year. But I did drive through them and up and over the passes on our way to Seattle. I was able to paint the high spots on her house, but when I would climb down I stumbled a few times!
My forgetting is getting worse, at times.
What have you been doing?

Hmmm...you continue to confound science so this thread will carry on. Now you're making me nervous painting high spots and stumbling down ladders!

snow- I was able to cut and split 7 wheelbarrows of wood today. It was a mostly dead hardwood tree from the neighbors. As you know, it was painful, my maul is 14#. But it should be very good wood by late Sep.
I have been thinking aob0ut the kind of leadership you would deploy for a few situations at work.

The two days in the woods were great!

agape'
Lon