Kickas.org Forums Treatments, Drugs and Alternatives AS Pharmacy Anyone tried Humira AND Remicade out there?

Hi Lon,

I believe swollen joints can actually be a side-effect of Remicade. Considering it is supposed to do the opposite, I'd let your doc know and would be concerned if that gets any worse or doesn't resolve.

Short of breath, I am not sure of that one. It could be an allergic type of reaction -- if that happens following an infusion then make sure to let them know - they might want to give you a "pre-med" that helps to prevent any sort of allergic reaction. I don't take a pre-med, but notice that many folks at the infusion clinic do.

I am having a nice summer so far, thanks. Love the warm weather and getting out of the city. Hope you are able to enjoy the summer too!

psr / mig- no relief yet from remicade.
I am still on morphine and such.

psr- any changes yet?

I'm on Humira.

I do take an Aleve about once or twice a month, often for migraines, but sometimes to get me to the next Humira shot.

Sometimes I'll take an Aleve once or twice a day for a few days after about a week since my Humira shot if its wearing off particularly early.

And when I first started Humira, June 2013, that August, I needed a 10 day course of methylprednisone for a particularly nasty flare. Prior to Humira, I always had nasty summer flares and that first year was no different, but haven't needed to do that since. And last summer and so far this summer, summer flares seem better.

I will also take methylprednisone if I go to a week long conference in a city, because even now, even after 3+ years on Humira, my feet can not handle the amount of walking on hard concrete that is necessary. Since I only go once every year or two, its not really too much steroid.

So yes, I do use meds as I need to, but mostly now its just Humira. And I'm still on daily LDN (low dose naltrexone).

I have been on Remicade for 10 months, it worked amazingly well for the first 6 months and then just stopped working for my arthritis. I think it's still helping my intestinal issues.

The hardest part was having the pain go away and then come back. Psychologically I went from a very hard place to an amazing place and back again.

But I refuse to be a victim, somehow I will get back to that happy place.

I had been taking NSAIDs from age 19 to age 66. I began Remicade infusions on my doctor's advice, but was hospitalized for 7 days with serious bout of Bacterial Pneumonia after the second Remicade infusion. The month after I was released from the hospital I had a MERSA infection--which concerned me, but apparently was not serious. It has now been 2 years since my last Remicade infusion and I am still considering following the advice of my Rheumatologist and restarting the infusions, but for now I am taking Aleve, doing OK and working full time.