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Joined: Sep 2001
Posts: 227
Second_Degree_AS_Kicker
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OP
Second_Degree_AS_Kicker
Joined: Sep 2001
Posts: 227 |
Started with terrible stomach pain Monday which got the arthritis flaring. Also has mysterious blisters popping up on her back, which she saw the derm. for last Friday. Regular biopsy was negative. He said it could be one of her meds or it could be another type of autoimmune disease, so will send a biopsy off for an autoimmune assay next week when we see him. Kate called rheumy yesterday, who said to come in immediately (70 mile drive). She is is perplexed by stomach/spine/rash combination. Wanted Kate to see GI doc within a week. she could get us in that quick to someone in Dallas, but it's a half day off work for me every time we run to Dallas to the doc. Thank goodness the office manager of the local GI practice is a good friend of mine and she got us in MONDAY! There is usually a 2 month wait. I am taking Kate to have blood work done in a few minutes. She was too dehydrated at the doctor yesterday to find a vein. Sandi Love is all you need.
The Beatles. 
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Joined: Sep 2001
Posts: 2,320
Colonial_AS_Kicker
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Colonial_AS_Kicker
Joined: Sep 2001
Posts: 2,320 |
Gosh Sandi...Im so sorry  ....how stressful for you as a mom..and how frightening for the both of you....please keep us posted on what you find out...and send Kate our love....   hugs....Debbie....http://www.geocities.com/debb92688
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Joined: Sep 2001
Posts: 6,248 Likes: 5
Addicted_to_AS_Kickin
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Addicted_to_AS_Kickin
Joined: Sep 2001
Posts: 6,248 Likes: 5 |
My heart goes out to you and that sweet young daughter of yours. I hadn't know until recently how tough it is to watch and try to help a loved one when you don't have the answers. You both are in my little family's thoughts.   stevec-they also serve who stand and wait
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Joined: May 2002
Posts: 314
Fourth_Degree_AS_Kicker
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Fourth_Degree_AS_Kicker
Joined: May 2002
Posts: 314 |
Sandi,
I hope things work out well for you and your daughter. Sending prayers for both of you.
Rickey
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Joined: May 2002
Posts: 406
Black_Belt_AS_Kicker
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Black_Belt_AS_Kicker
Joined: May 2002
Posts: 406 |
Sandi -
How scary for both you and your daughter. Hopefully you will get some answers soon. Sending you prayers and love.
Allison
Allison 
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Joined: Apr 2002
Posts: 131
Journeyman_AS_Kicker
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Journeyman_AS_Kicker
Joined: Apr 2002
Posts: 131 |
Sandi,
I would be really interested in hearing what you find out about the blisters. I get white spots under the skin on my back, not really blisters. They come and go. Never had a dr who could explain it. One said he did a lot of research on it between appts but couldn't figure it out.
Valentine
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Joined: Sep 2001
Posts: 1,985
Captain_AS_Kicker
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Captain_AS_Kicker
Joined: Sep 2001
Posts: 1,985 |
I'm so Sorry to hear Kate is so sick.....I hope you both get some answers soon.....thinking of you both at this tough time....let us know when you have some news Take care
Take care
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Joined: Jun 2002
Posts: 212
Second_Degree_AS_Kicker
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Second_Degree_AS_Kicker
Joined: Jun 2002
Posts: 212 |
Kate,
I hope things go well, I have had alot of G.I. problems and continue to do so. Have your daughter rub your tummy and make it all better! Arthur
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Joined: Sep 2001
Posts: 2,609
General_AS_Kicker
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General_AS_Kicker
Joined: Sep 2001
Posts: 2,609 |
Kate will be in my prayers. I hope she is able to find relief. Hugs, Cindy 
Hugs,
Cindy
Back pain since early childhood. Dx'd with HLB27 iritis in '96, AS in 2001, FMS in 2002.
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Joined: Sep 2001
Posts: 7,427
Addicted_to_AS_Kickin
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Addicted_to_AS_Kickin
Joined: Sep 2001
Posts: 7,427 |
Hi there..... So very sorry to hear about your daughter not feeling well. Been there before with the dehydration. That happened to me alot while I was preggers with my baby 22 months ago......preAS problems started popping up at that time. My veins were collapsing all the time and they did not know what or why it was happening to me. I was getting mouth ulcers frequently at that time. I hope the GI doc can get some answers for you and Kate quickly....I know how tough it is... As for the rash/blisters.....I've had that happen to me. Has she started any new medicines...??? I had that happen and my dermatologist said I get "vascular" reactions. Which means the reactions take a few days for the med to cause a reaction. I had my worst one with Sulfasalazine. It was actually helping me a bit...but it took about almost two weeks when I started with a few red blisters .....then after a couple days...yikeys!! I had my whole calves covered completely up!! It took about a month for them to clear up. It was awful..and he just gave me a cream to help them heal and that was it......wait it out. I hope your daughter gets better soon....and will keep you all in my prayers.......she's such a beautiful and sweet girl.....much too young to have to go through this..breaks my heart....hugs to you my friend....]]]]]]] Toodles! Angie  
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