Kickas.org Forums Ankylosing Spondylitis General Discussion Helpful Tips diagnosis

Hi everybody..................first post.

It took 10 long years before i was diagnosed, even now i feel people don't understand and think it's only a sore back!!!!!!!!!!(i wish).

welcome bono, your not alone, it also took 10+ years to be diagnosed, and nobody but us know just how miserable this disease makes us. It really is more than just a sore back. Just keep your head up and take no crap from nobody about it.


A real pain in the butt.

Macybird,
I received the FM diagnosis after the AS diagnosis (again with the suggestion that sleep disturbance from AS caused the FM). I think my FM disappeared though once I got enough treatment for the AS as I don't notice those sensitive spots anymore. Good luck, hope you are feeling better these days and getting some answers from your doctors.
Peggy

Hey,
this may seem like a silly question But.... Are you a woman??? Most women get treated like this when they have A.S. because it is a disease that effects mostly men. Do what most people do. Get as far away from that doctor as you can. Some doctors just don't get the fact that women can get the disease too. If my assuption is wrong please don't take offense. But I have rarely heard of a man being diagnosed with any thing other than A.S. when the symptoms show up. So that was why I guessed you were a female of our species.

Don't give up though. Doctors tend to shy away from diagnosing women with A.S. even though the facts state that women do get the disease. Especially when there are relatives with it as well. Just try and find a doctor who knows a bit more than the one you saw.

Phill Lee

Geez, Dan, I have spitting fingernails!!!! I thought maybe it wsa the meds, could it be yet another manifestation of the dread AS???? They separate, they split (down to the quick, ouch!), they are UGLY!!!! I haven't been to this forum in ages, glad I stopped by, found another fingernail spitting kind of person

Cheryl

Dogs don't care if the house is clean

Hello,
I am new to this website, and in the process of being diagnosed. I have had my symptoms for 8 years. I have been told I am too heavy (lost 50Lbs) still have symptoms, too old (I am 40), and finally fibromalgia. LOL, my sister starts showing the same symptoms and is very quickly diagnosed with AS. Her doctor mentioned I should probably be checked out by a rhuemy. I had my appointment last week. He is now doing tests for the gene and xrays. He told me it could not be fibro... because pain gets better as I move around, and I have responded to the anti-imflammatories. We are now seeing it has probably been in our family for a couple of generations. I know this sounds weird, but I really hope that testing comes back positive. I am so tired of trying to convince doctor and family that there is something wrong and it is not all in my head. LOL ziggynwas

Welcome Bono!

Helen

Welcome Ziggynwas!

Helen

Hi Ziggy

My younger Brother has AS as well , it took about five years after my dx to confirm his dx too . It's not rocket science , when he had alot of the same symptoms too .



Check out this site in more detail , there's alot of info here .

Regards Calixto.



Everyday above ground is a great day ! .
If you don't believe me try missing one .

We have positive Lyme Disease by PCR and are identical to AS in symptoms. My dauhgter was diagnosed AS and I was diagnosed MS. I had back surgery already, and within a year it was bad again.

in 2001 my daughter was positive DNA test for Lyme disease, obtained treatment and her AS has disappeared.

If you would like more information, please email me.

Theresa