Kickas.org Forums Treatments, Drugs and Alternatives Anti TNF and other biological medications Who's on Enbrel

I'm sorry to hear your iritis is being so stubborn. I hope it resolves itself. I have had a few bad attacks in the past, but dilating every 4 hours and PredForte every 30 minutes usually zaps it pretty quickly. I've not had to have the injections. I was threatened with them once, but my eye decided to cooperate. I'm sending prayers your way that this is soon under control.

Mine is sort of under control. I'm down to one drop every other day. But if I go three days, I flare up again. My eye dr thought I'd probably have to stay on the Pred forever. I'm going to try to get the dose down to once or twice a week. That should keep it from flaring and not be so much that I suffer side effects.

Hugs,

Cindy

Life may not be the party we hoped for, but while we are here we might as well dance.

I don't have any idea what would have happened with your labs. Hopefully it is not serious. Keep us informed.

I have a rheumy visit Wednesday. I'm going armed with a list of questions. Hopefully I'll learn a bit more about this mouse juice we've been shooting up with.

Good luck, Dan, and this post is loaded with warm thoughts, cyber hugs and prayers. Take care.

Hugs,

Cindy

Life may not be the party we hoped for, but while we are here we might as well dance.

Thanks Cindy...mine will not be normal either. My neck is killing me although fingers are slightly better. I feel the AS. ...but not in the back.

Betty

Hi Betty, Cindy,
Well, is I can keep from going crazy, I will let you know. But what I do not understand why my rhuemy send them to my family pratice physician. My rhuemy I had before would wait until the next appointment to discuss them with me. I have an appointment with my new rhuemy on April 2. I have not seen my family physician since I started seeing my rhuemies. My family physician couldn't do anything else that's why I was send to the rhuemy. I am just curious about why my family physician is discussing my lab work and not my rhuemy. I will find out tormorrow. Don't you all see this kind of wierd?..
Dan


I'm a little pain on the "AS"..

Thanks Cindy,
I need all the prayers. One thing that I think showed up in my lab work was my thyroid levels. I was missing my pills alot. I kept forgetting to take them. I know that before I started taking less and it showed up in the lab work. I told my doctor that I had drop my intake to two pills vice three pills and it came out on the lab work. That's probably what happened this time...I hope......
I just hate to think that Enbrel is causing something bad in my body.....
Thanks again for the prayers.....
Dan


I'm a little pain on the "AS"..

Cindy, Betty,
Just got back from my doctor. He said my liver, blood levels were a little high. The liver was 44 normal was 40. I didn't get all the blood count. Also my thyroid was high. I know why because I missed alot of days of taking my synthroid. When I get Iritis I just can think and forget to take my pills. Anyway I am going back in April for another complete physical and lab work. If it clear it then I am doing ok.
I told my doctor that since I started taking Enbrel the level had gone up. He said he wasnt too smart on Enbrel and was going to research it. So all in all I don't think I am going to die after all....sheesshh... thanks god. and your prayers. I will keep you guys posted. But I think I rather go back to using Kinerets shots then Enbrel. Kinerets do not have all those nasty side effects.

Dan


I'm a little pain on the "AS"..

I got absolutely nothing when I asked about Enbrel side effects. It was like a wall came up. Oh, well. If possible, I plan to finish the study, but will not continue Enbrel past that point. I'm still looking for answers. I know the information is out there somewhere. There is no way Betty and I could have pulled this off and made up all this stuff.



Hugs,

Cindy

Life may not be the party we hoped for, but while we are here we might as well dance.

Cindy,
When I get my Enbrel each package has a four page side effect included. This is the way it start "SINCE THE PRODUCT WAS FIRST INTRODUCED, SERIOUS INFECTIONS, SOME INVOLVING DEATH, HAVE BEEN REPORTED IN PATENTS USING ENBREL. MANY OF THESE INFECTIONS OCCURRED IN PATIENTS WHO WERE PRONE TO INFECTIONS, SUCH AS THOSE PATIENTS WITH ADVANCED OR POORLY CONTROLLED DIABETES. ALSO,
HEADACHE, NAUSEA, RHINITIS, DIZZINESS, PHARYNGITIS, COUGH, ASTHENIA, ABDOMINAL PAIN(WHICH I HAVE),RAH, PERIPERIAL EDEMA, RESPIRATORY DISORDER, DYSPEPSIA, SINUSITIS,VOMITING,MOUTH ULCERS,ALOPECIA,PNEUMONITIS...THERE HAVE BEEN REPORTS OF SERIOUS NERVOUSYSTEM DISORDERS SUCH AS MULTIPLE SCLEROSIS, SEIZURE, OR INFLAMMATION OF THE NERVES OF THE EYES". So these are some of the side effects on that four page brochure.
Or you can go to their web site and probably tell you the same.

Dan


I'm a little pain on the "AS"..