Thank you to everyone who responded so quickly to my posting I really appreciate your help and support. It's great to hear a success story about someone with JAS - there is hope! I know what you mean about processed foods. The first time I stood in the supermarket and could have wept. No problem with fresh fruit, veg and meat but everything else had starch (even organic yogurts). I had no idea it was in so many foods.
Angelmom - I'm so sorry to hear about your kids. It's bad enough being scared stiff about one, let alone two. Tori sounds to be a very brave, determined young lady but even so, I really hope your worst fears are unfounded. Thanks again everybody. You're all great and boy, did I need a boost!