Karen I just sent you a PM....I know there are common symptoms in many autoimmune diseases, until radiographic evidence showed in my films, it was anybody's guess with me too, actually I Dxed myself after being told by an ortho that I had spinal fusion and then I told my doctor what tests to run and it all matched up and he sent me to a rheumie and he agreed that I did indeed have AS, I just wanted to clarify that unstable SI joints isn't one of the symptoms of AS, neither early on nor later on....if I were still undiagnosed and had unstable SI joints, having that knowledge would make me look at other diseases and that's really was my point, you can tell some people that the sun is yellow and they'll argue that's it's purple all day long...
And if that's tolerated too long, it becomes accepted as a truth and that would be a great disservice to those that come here looking for answers...And I'm so sorry that you're going through all of this, I know it's frustrating for you and if I could make it all go away for you, I'd do it in a New York minute...
