Mig,
Oh gosh, I wasn't offended at anything you said. I really do appreciate your research regarding this. If I've seemed not to, I sincerely apologize.
I'm not in the slightest offended by someone offering information which is different from the information I have. I'm always trying to collect more information to help both myself and others. It's possible to offer someone a contradictory viewpoint or piece of information and do so respectfully and your posts have always been respectful. In fact, in correcting misconceptions we are doing one another a favor and I appreciate that. I truly have always sensed that desire to help in your posts, mig. The posts I had issues with were not any of yours and I don't think that it was me who took exception to what you said about an unstable SI. Honestly, I can't say you convinced me, but nor did I think you were wrong or out of line in any way. In fact, I've given careful thought to what you have said and, in the end, I'm not sure what conclusion to come to. I'm hearing contradictory evidence and for now need to just keep the issue in mind.
Offering different information is never offensive to me. I'm a scientist and I'm always ready to examine new evidence. Disagreeing with a fact is never offensive to me. Impugning my personal medical choices IS offensive to me and none of your posts has come close to doing that, mig. I was addressing someone else with that comment.
I'm very hesitant to bring this up because I don't want to start something else, but the Amor diagnostic criteria for sponyloarthropathy do not require sacroilitis for a diagnosis:
http://emedicine.medscape.com/article/332945-diagnosisDoes that mean that one of us is right and the other is wrong? Absolutely not! It means that there are different definitions of spondyloarthropathy and we are working from different definitions and so coming to different conclusions. Will one of these definitions ultimately become the generally accepted medical one? I certainly hope so because it would help to end the confusion and help people to get the treatment they need. I don't know which one will ultimately become the "right" definition, but surely medicine will sort it out.
When I referred to minimizing another's pain, I didn't mean that anyone had done that to me... at least I don't think that's what I was referring to. This thread has gotten so convoluted it's hard to remember where I was and I don't feel like going back over it all. I think I was trying to let someone else know that I didn't think that what they went through was trivial.
You are right; if we were sitting next to one another it would be so much more clear what we were trying to say and what we were referring to.
Like I said earlier, when I follow stories like yours on kickas, I so wish that there was a treatment or a cure so that you didn't have so many challenges to face. It's not fair that some people have so much pain and, quite honestly, I sometimes wonder if God knows what he is doing in running this world of ours.
Karen
