Laurie - how is Dany doing these days? He's still nsd isn't he? Hope he's doing well.
Acupuncture is definitely something I want to try for this. I've researched it, and a whole bunch of studies showed it didn't work so well.... but it did work a little for some people. Couldn't hurt to try though, right?
I was actually tapering off a small dose of amitryptyline when the rls started, and I stopped taking it immediately because I remember reading it could make rls worse. Other than that, I wasn't taking anything, and the only meds I'm on now are the ones that moderately help the rls.

I keep wondering if it started because I was under alot of stress at that time. Also, I had finished tapering off a huge dose of prednisone 3 weeks before it started. Both my gp and neuro don't think that had anything to do with it. Who knows, really. Could be autoimmune maybe.
Anyway, hope you're doing well too. Thanks for the reply and suggestions!