I agree that I should try all the tnf's, at least you would think the decision would be up to me, anyway. This Rheumy "says" he is open. But in all honestly he is open as long as you let him make all the decisions. Sometimes it seems like it throws these Rheumy's off to all of a sudden have a young, opinionated, well-read on her disease, (did I mention opinionated??? ) kind of patient, verses the kind that says, "OK Doctor, thank you Doctor."

I HOPE HOPE HOPE this radon thing works for me. What will be interesting to see is if my crp goes down after the treatment like the research says it can. I did have all new labs drawn last week. That will be interesting.

New toes? That would be awesome, as long as they don't hurt from AS like my original 10 do!!! Superpowers would be cool. Hopefully I don't accidentally shoot a lazer beam out my eye on my return visit to the rheumy.

Yikes, I feel really bad for you and your neck. My neck is bar none the most painful place I have had AS. I read a book by an Aussi PT named Robin Mackenzie back when I was still trying to figure out a Dx. He has a whole slew of neck and back stretches/exercises. I still do the neck ones a couple of times everyday. They really help me.

Here's wishing your spondylophomytes don't find each other!!

-Donette