Yes Dow in case you hadn't noticed I went 23 years without diagnosis so I do know what its like and I went through very severe pain when at times I had to be carried. And its far less dangerous for people with a diagnosis to try and help people.I would never diagnose anyone's condition I'm not qualified to do so.But I also think it is not good to do self diagnoses there are too many conditions that can have similar symptoms and to argue with Doctors that you have one thing when you could have another is not a good idea.You cant blame Doctors all the time AS can be difficult to diagnose as can RA.
And don't tell me to be understanding and patient my knowledge is from pain and suffering AS for a long time and I have already said I understand and sympathy with people who are not diagnosed and know the frustration they feel.All I have said is its not good to get to the point of obsession were your life is spent trying to find an answer in books and on the net.Life is what you make it and very short as long as your getting treatment and its helping have the best life you can.
And to say to have a wider birth between those who have a diagnoses and those that don't is the most ridiculous comment I've ever heard.