i hope i stay on subject here..
my take on this subject also with some thoughts on your all's replies.
i think this disease and others like it are a living nightmare that we cant awake from. Dx or not, pain is pain, support is support, even if its not the answer/reply someone is seeking.
we all have the right to live our life the way we want [to a certain degree...you know what i mean]. if that means we doctor ourselves with knowledge/research, look to 'professionals', or a combination of both. what ever fulfills us is what we should be doing. in the end...all that really matters is ..'are you happy?'
also, the fact that most of us have been failed by doctors at some point so its, i feel, only natural to seek your own answers. the only one who truly knows your pain is you and its instict that we fight for our survival.
