Hey you,
Wondered when you were going to pop back in.
Always thinking about you and wondering how you are getting on.
Hon, I don't know what you are doing to treat you AS at the moment, but I would suggest that if you are not doing NSD you need to try something else instead to guard against the inflammation/pain/damage issues that you are facing.
Exercise: stretching, swimming, walking anything gentle.
Medication: chat to your rheumy and see what he recommends and what you think might be the most useful/acceptable choice for you. Be honest about any fears or concerns you have. Is there anyway you can go on your own to see the doctor, and leave unhelpful family members outside? Can you see a different doctor at the surgery (not sure how it works where you live) as you have not got a good relationship with the current one?
Diet: even if you are not following the NSD, you can still try to avoid the worst cuprits or not eat so much of them, this could help your gut problems a little too maybe.
All in all, I would say don't sit there with no help or treatment, sweetie. I would hate for you to go downhill any quicker than you seem to be already.
Don't give up, Seb. It must be very hard for you at home, you have done the right thing to come on here - we DO understand what you are going through.
I wish I could do more to help you
