reading all of this with interest.

right now, for myself, i like the following theory:

the lack of lactobacillus in my gut allows unfavorable bacteria to be there too much. or that the bad bacteria have out competed the good bacteria. as evidence by stool sample testing.

in either case, this is what has given me that lower level bowel inflammation that drizzit talks about.

and that has led to leaky gut.

and that has allowed casein to sneak through.

and casein triggers an inflammatory response in my body (as determined through blood work).

so, a similar theory, where it starts with the idea of the gut microbiome. but rather than it being a response to the bacteria, its a response to the food antigens. and instead of starch, for me, it seems to be casein and to a lesser extent, egg.

so those are the two (casein and egg) i stay away from.

and probiotics to try to change the gut flora and hopefully in the process, heal the gut.

i do seem to be better in between flares now. so maybe there is something to all of this.

though on a LSD for years due to the insulin resistance, between the blood tests and all celiac tests coming back negative, and my not having the HLA-B27 gene, the leaky gut / casein inflammatory response just makes more sense for me.

but then again, i'm undiff spondy, not AS.

interestingly, i just read today about gluten and / or casein possibly being responsible for all kinds of chronic health issues. and this article was promoting a gluten-free, casein-free diet. i'm slowly coming around to the idea that casein could have been causing so many of my problems. i'm not wed to the idea, but it does make a lot of sense for me, largely based on the tests i've had done and their results.



sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)