pspondylitis, your request for a sticky thread has already be adressed by a SITE ADMIN (higher authority than moderators) here and I know that you have read it. No/Low Starch Diet Success Stories


From it I quote Mig's replies:

"Hi pspondylitis,

I'd like to reply to your request, since I can appreciate your misunderstanding.

The purpose of the NSD and Diet-related Forum, together with the Diet-specific Recipes Forum is not to provide a 'balanced' view but rather to offer an area dedicated to those interested in supporting each other in a diet approach to the treatment of their AS. You may find the biologics forum equally biased.

Within the context of a site with multiple forums available, providing similar dedicated areas of support to those interested in a wide variety of treatment approaches, KickAS.org offers the best patient to patient support (imo) where we can share with, and learn from, the experience of others coping with AS.

Set-backs and failures, for those who have not found success with any given treatment are discussed in every forum on KA, but KA is all about support and highlighting what works and celebrating each others successes. I fail to see how making any of our failures into sticky posts will serve to encourage anyone to carry on their fight to find the best way to manage their disease. We've all probably experienced enough failures in our lives.

Spirited and constructive debate is both healthy and welcome in all forums of course, as long as we continue to be mindful and considerate of each others treatment preferences, personal experiences, and opinions.

It seems you have been involved in some very balanced and open discussions regarding the merits of NSD and the scientific research behind it. That you may not find many like-minded viewpoints within this forum, should probably not come as a surprise.

Thank you for your input - we hope you will continue to enjoy KA!
mig"


and then after that:



"Hi pspondylitis,

In the hope of improving your understanding, allow me to try once more also. KA is not offering a treatment - but offers a *place* for discussion. KA is a shell and home for people to discuss. The site is not offering medical advice, nor are we doctors.

KA's forums did not come to be through top down design but were opened over the years based on interest expressed by it's community. Interest in diet was such that a diet forum was created early on in the history of this site, just as a biologics forum came to be when these newer treatments became available. The volunteer team that helps to oversee the site does not decide on content. Content is created by members. If there had been few successes and multiple failures - this forum surely would have ceased to exist, rather than to flourish as it has. The percentage or balance of thread topics you find on this forum is a direct reflection of the members experiences - if the majority are finding the diet beneficial - that's just a fact!

Re: the successes sticky topic. Again the thread topic was initiated by a long time member of KA. I can't even recall if it was stickied from the beginning or if it kept naturally being bumped up so often that we eventually just stickied it there for convenience. Regardless, if so many had not piled on to add their stories, it would have been un-stickied. You are correct that people find it a source of encouragement!

I absolutely agree that everyone needs to balance the risk versus benefits for themselves, in the context of their own health situation, after doing their own research (using whichever combination of resources they feel are valid) and in consultation with their own physicians. I understand your concern for others, I have felt similar concerns myself in the past on a variety of subjects discussed, however, I fundamentally respect the right of others to make their own choices and decisions.

I'm sure you can appreciate that without a stronger impetus to change a winning formula that has helped so many - this is KA!
mig"


Please respect the decision that has been made.



Last edited by Kiwi; 04/24/12 12:15 AM.

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