Hi Laurel, I don't have much to add, but just wanted to say I hope you and your doctor can come up with a treatment that helps soon. Best of luck!
PS, if you're able to do some gentle exercise, and your doctor/physio/naturopath has suggested that you do, then it may help the pain. Just listen to your body - if it hurts too much, don't push it. Also check out the No Starch Diet (NSD) - it's helped many people. One more thing, I don't think that blood inflammation markers are the only indicators of disease activity. My mom and I have never had elevated markers - and she's fused all over the place (and still very active I might add). One of your best weapons in the battle is educating yourself and it sounds like you're well on your way. Ok so maybe I did have a bunch more to add... lol
Last edited by Megan; 03/15/13 06:24 AM.