Just an update on the Fecal Transplant (FMT). I went to Dr. Shepard in Tampa the 2nd week of July, and after one month, I'm seeing improvement. It isn't 100%, but I've had no flares for 3 weeks, and I'm *completely* off prednisone for the first time since nearly February (haven't had any since I started the treatment in July).
I don't know if it's solely the FMT. I still have gastro issues with a twisted colon and hiatal hernia. Still, I'm now able to eat more starchy things including gluten free pizza (rice/tapioca flour...no bean flour!) and sweet potatoes and winter squash. Happily, I've finally gained some weight (I was down to 108 at 6 feet tall...now up to 120).
I did make a couple changes to medications. I'm only on LDN and a IBS medication called Linzess (to keep colon moving). I did make a change in the place that compounds my LDN. I changed to Scrips pharmacy in Florida which does mail order. Apparently, some places compound LDN incorrectly and it is totally ineffective. I do think it's making a difference since I can feel very swollen at night but wake up in the morning feeling completely better. These are the only two medications I'm taking besides a few supplements (fish oil - sardine/anchovy, turmeric, and plant sterols). I'm also finally able to take probiotics for the first time in years. When I took probiotics before, they would trigger a flare/reaction. This seems like a significant change as well.
I'm still waiting for a few months to see if the improvement continues before I get excited and try spreading the word more widely.
If you have severe colon/gut issues, I do recommend Dr. Shepard. He's incredibly knowledgeable and willing to listen and try new things. I'm thankful for innovative doctors like him! Please let me know if you have any questions about the process...totally painless and simple. I even can suggest a wonderful AirBNB to stay at that is 5 minutes from his office!
