I'm not sure anyone can really answer that, other than there seems to be more than one pathway for different people.
The important thing is to not give up, not let it get the best of you. I know that is easier said than done. When I was at my lowest, I had to have others remind me of that.
Living one day at a time like you said, was the only way I got through my darkest days.
Just have a good doctor who won't give up on you, will continue to try new things to help you.
What about remicade? If its not an option for you, maybe it will be in the future.
What about a short course of prednisone / methylprednisone, just to see if it works, then at least you'll know, and maybe have something every so often for your worst flares.
I know your future seems daunting right now, but it is often in our darkest hour, that we get a break.
Thinking of you.
I admire your strength; let us be your strength as well.
