Originally Posted By Kellybells
I'm curious: what's the longest you've gone without falling off the (NSD) wagon?


For me, within the past two and a half years, at most two months. That was probably only at the very beginning.

I quickly got better at that time (damage was not noticeable when there was no inflammation) and began to eat noodles in the morning everyday and coffee a couple times a day. Perhaps other rare abuses were well tolerated.

Sadly, these days I am terrible at staying on the wagon, suffer a lot and can feel the accumulating damage. Just over a year ago I did not have a problem with my sacrum but now it is chronically burning and stiff. Since October symptoms of tingling, burning, needles and a throbbing are in my but, hands, face, neck, legs and feet -- worse in the middle of the night along with head and neck pain which diminish after a couple of hours. But the leg and arm symptoms are becoming more persistent in the day. Burning and stinging sensations in the calfs, feet and both left cheeks are constant now.

For those that find relief using NSD let me be a warning to stay on the wagon.

After last night I believe that I'm loosing ground on starch tolerance and my diet is narrowing -- I went out for a LSDinner. It feels like I really need to both weed and feed concurrently. A week ago the cheese cake with coffee and cold noodles was not as intense. I need to stop sticking my finger in the fan! No sympathy please!

The way I feel the disease migrates in my body gives me the strong impression that the cause is microbes that can hide in the cells and evade antibodies in the blood. They prefer collagen but don't mind mucousal membranes either (the gut, sinuses, etc); they seem to like muscle and nerve too. I don't know if Klebsiella can sequester in the cells but I doubt that it is the only cause. I don't think a definitive marker will ever be found but as infectious agents become more accepted then doctors will have to resort to interpreting a test like the Western Bolt test used in Lyme Disease, but including the use of the human metabalome on micro-arrays combined with AI would be better. I do not know why the technology is not common in medical practice already. All the components were already in development fifteen year ago (minus massive databases). Right now, what I see are organizations trying to collect genomic, metabolomic and medical history to build massive datasets. It's just business that slows down medical advances. Ethics and trust also.

Your Cynic!
Kevin


HLA-B27 neg, vague AS symptoms in 20s and early 30s
1993:fibromyalgia (age 25)
2013.07:Reverse blockage in a SCUBA accident
2013.08:Scratched by a sick cat
2013.09:Strange sore throat then meningitis
2014:Chronic inflammation at the base of the skull
2014 to early 2015:excess NSAID use developed complete axial inflammation, included psoriasis
NSD helped well and but was not perfect
2018.07: weak +'ve tests for borrelia, babesia, bartonella and mycoplasma pneumonia using Armin Lab, ANA=equivocal