Kickas.org Forums Treatments, Drugs and Alternatives NSD and diet-related; so much for a cure...

Same here, Rutin only helps me with pain in peripheral areas for some reason. Weird eh! I have not found Rutin to help with pain in my hips, spine, ribs, neck or shoulders.

The pain I get with my knee.. well it isn't really "in" my knee, it's the tendon/ligament between my shin and knee.

z

"So long and thanks for all the fish" - Hitch Hikers Guide To The Galaxy

Ellyn,
I take 500 mg of rutin as close to every 6 hours as I can without disrupting sleep. From what I have researched we need 1000-3000 mg of rutin a day to have an antiinflammatory effect so you are certainly in that range. I take it with meals and at bedtime so not necessarily with food.
Hope you have good results. Keep us posted!
LindaG

Nishant,
Thank you for your optimism! I think you are correct. I've really come to a point where I think I can happily forgo starch on a daily basis. I will be content if I'm just able to enjoy our family get-together feasts over the holidays!
LindaG

Zark,
I am probably most impressed with the improvement in my eyes with the rutin. I am curious about the pains in your eyes that you allude to. I have explained my eye pains to my ophthmalogist(s) and they act as though I have rocks in my head (and perhaps I do). I would get strange stabs in my eyes that were quite painful before the rutin. These have resolved for the most part except in my flare times. I would note these pains even though my eyes did not appear to be inflamed. Do you have anything like this?
LindaG

There are times where I have eaten the wrong food and would feel a tiny stab in my eye. But that would always go away quickly after taking extra Rutin. I am a bit worried that your ophthamologists dont appear to have treated or diagnosed your eye pains (have they??). Perhaps you should find a more informed opthamologist , and make sure he knows you have AS. Iritis is associated with AS ... in fact it was an opthamologist who first suspected I had AS !

The last time I went to an opthamologist they did "slit lamp tests" to check how much debri and gunk (immune cells) were floating around my eye.. an indication of inflammation. They also checked how much pressure was in my eye... bit like tyres hehee...

The last serious iritis flair was over a year ago.. It started with the usual stabbing pains. And when it got really bad my eye started to ache. My iris became stuck in a kind of cramp, and wouldn't move as the light changed .. ie: my pupil wouldn't dilate. Also when I looked at bright lights they had a big halo around them - ithink that was due to all the inflammatory gunk in my eye.

regards,
z

"So long and thanks for all the fish" - Hitch Hikers Guide To The Galaxy

Zark,
Yes, my ophthmalogist has treated me for chronic iritis for 3 years. My internist gave me the diagnosis mixed connective tissue disease, but the ophthmalogist said it was definitely the HLAB27+ that was causing the problem, asked me if I had back pain but didn't come out and actually say AS. Figured that one out myself after reading on the net that 90% of people with iritis who are HLAB27+ have AS and then finding this site confirmed it all in my head.
LindaG

Linda
good to hear! When I had my iritis, I found that oral prednisolone was more effective at controlling my iritis. Your opthomologist may disagree however :-) .. I think the reason is that the iritis may be a result of our systemic inflammation, which the oral cortisone addresses, and the prednisolone drops do not.

A good forum for iritis is here:
http://www.iritis.org/

z

"So long and thanks for all the fish" - Hitch Hikers Guide To The Galaxy