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Joined: Jun 2003
Posts: 3,581
Royal_AS_kicker
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OP
Royal_AS_kicker
Joined: Jun 2003
Posts: 3,581 |
Hiya All
thanks everyone.....slowly returning to "normal" heart seems better not so skippy etc and I'm walking really well after the IV cortisone. Just keeping an eye on my blood pressure etc but it too is settling.
I'm in pretty good spritis, I see the new Gastro specialist next week, see if he can shed some light on what to do next.
I better get up and move now,
Take Care all of you,
David
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Joined: Jun 2006
Posts: 126
Journeyman_AS_Kicker
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Journeyman_AS_Kicker
Joined: Jun 2006
Posts: 126 |
Hi Davo
Just wanted to wish you well. Sounds like you have been having a really rough time lately. Hope your Gastro app't is a good one for you. Good to hear you are feeling better than you were, that always raises the spirit.
Di
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Joined: Jun 2003
Posts: 3,581
Royal_AS_kicker
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OP
Royal_AS_kicker
Joined: Jun 2003
Posts: 3,581 |
Hiya,
Just been to see the new gastro, lots of blood work etc....see how it goes but he's keen to fix me up a bit more.
Still trying to settle the gut and neck from a few weeks ago, so back to no sleep again just as well the World Cup is on in Europe so the live games are in the midde of the night. Just when I was getting used to sleeping again.
David
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Joined: Apr 2002
Posts: 3,739
SENSational_AS_Kicker
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SENSational_AS_Kicker
Joined: Apr 2002
Posts: 3,739 |
Well I hope your new gastro pulls through with some really good help for you .
Hope you get some better sleep soon too.
Maggie
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Joined: Nov 2001
Posts: 18,187 Likes: 7
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Nov 2001
Posts: 18,187 Likes: 7 |
Dave, if nothing else, you'll be the KA world cup expert.  I do wish that you were doing better, my friend. Sounds like you have a good new doc in the gastro guy, however. Which I'm glad to know. Keep us posted, yes? Many warm hugs,
Kat
A life lived in fear is a life half lived.
"Strictly Ballroom"
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Joined: Sep 2001
Posts: 7,427
Addicted_to_AS_Kickin
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Addicted_to_AS_Kickin
Joined: Sep 2001
Posts: 7,427 |
hi dave... so nice to see you posting..but i wish it were with better health news...  are you on Methrotrexate? i cant remember what meds you were on and if they are helping. i've taken my 3rd remicade infusion with good results. only flared this week but i think its our terrible humidity. possible rain lurking nearby.  how is your son doing? gianna is due to start sulfasalazine this week...so hoping this helps her out with out a reaction. talk soon my friend... 
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Joined: Jun 2003
Posts: 3,581
Royal_AS_kicker
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OP
Royal_AS_kicker
Joined: Jun 2003
Posts: 3,581 |
Hiya Bugs,
good to hear that the remicade is helping, I'm so glad that something is working for you!
I am sorry to hear Gianna is needing medication, I hope she can continue playing soccer.
Will is doing well on just the diet. He's quite careful about it as he has learnt the hard way about pizza etc...and I do n't give him much sympathy if it is self induced. I'm not nasty I just tease him...
His sport is going very well, he looks like the complete athelete and the joy he has from what he is achiveing is very pleasing. However his school work has dropped off it turn's out that he's having migrain/neck problems again and some of the leg pain etc is wearing him down.....so he's had a couple of weeks rest cut back a bit on the sport and the difference is suprising.
Hope the remicade keeps working Bugs!
david
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Joined: Nov 2002
Posts: 6,928 Likes: 3
Addicted_to_AS_Kickin
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Addicted_to_AS_Kickin
Joined: Nov 2002
Posts: 6,928 Likes: 3 |
(Dave) I have been thinking of you. I am sorry you are having such a hard time. I have managed to get a few days "rest" in the hospital from some arrythmia bouts. Thankfully, that hasn't happened in a long time. I hope yours calms down also. Take care. Blessings Possi 
![[Linked Image]](https://www.kickas.org/images/flowers/Smilingsun.gif) Possi ********************************************************* RUN WHEN YOU CAN, WALK IF YOU HAVE TO, CRAWL IF YOU MUST, JUST NEVER EVER GIVE UP! "A FRIEND HEARS THE SONG IN YOUR HEART AND SINGS IT TO YOU WHEN YOU CAN'T REMEMBER THE WORDS." "A FRIEND LOOKS THROUGH YOUR BROKEN FENCE TO ADMIRE YOUR FLOWERS."
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Joined: Jun 2003
Posts: 3,581
Royal_AS_kicker
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OP
Royal_AS_kicker
Joined: Jun 2003
Posts: 3,581 |
Hiya,
started to get some results back .....
neutraphilia and elevated WBC.....probably why I've feling a bit off!
amnemia....etc never seen that before!
CRP is up (never seen that before....!
But looks like I passed the screening for Imuran, TMPT is low risk
Oh....and guess what it's not celiac's disease....now I am suprised (NOT!).....
---------------------------------------------------
and my normal gastro still says it's IBS......!
---------------------------------------------------
New one actually checked my abdomen and told me any trouble straight to hospital.......
David
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Joined: Sep 2001
Posts: 2,920
Presidential_AS_Kicker
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Presidential_AS_Kicker
Joined: Sep 2001
Posts: 2,920 |
Hi David
Sorry to hear you've been suffering so much, but glad they seem to be finding out what's going on. R u going to try Imuran?
Good luck.
Sue
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