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Joined: Jul 2006
Posts: 140
Tamaroo Offline OP
Journeyman_AS_Kicker
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Journeyman_AS_Kicker
Joined: Jul 2006
Posts: 140
I went to a new Rheumie that Brad had referred me to & she was quite nice & seems to be using her nogan.

She sent me for a bone scan which I had done yesterday. She seems to think that I may have RA as well as AS but wants to gather all the info before making her official dx. Oh, and she did acknowledge that I have a bony mass at the bottom of my ribcage even though it did not show up on the x-ray-no it is not just in my mind thank God.

My spirits are up with this one as she does seem to be a real thinker. I have had & am having complications that are somewhat rare & she does seem to be a doctor that will be able to deal with that.

Thank you Brad and to all that supported me in being able to move forward from that bad place I was at!!!

Peace, Tammy


"Out of all the things I've lost I miss my mind the most"
Joined: Oct 2005
Posts: 404
Black_Belt_AS_Kicker
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Black_Belt_AS_Kicker
Joined: Oct 2005
Posts: 404
isnt it great to find one that actually listens to you.. I asked my rhuemy if he could see him as my reg doc, I would be willing to drive the 1 1/2 hr trip to see him instead of my prim doc whose office is 3 minutes from me ..I am happy for you, hopefully you can find some answers now.

Ang

Joined: Jan 2006
Posts: 3,016
Imperial_AS_Kicker
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Imperial_AS_Kicker
Joined: Jan 2006
Posts: 3,016
Tammy what wonderful news
There is nothing like a good doc to set your mind at ease.
Brad thanks for giving her this gift of a doc when she needed it most
Tammy when do you see her again?
Cindy


" That which does not kill me only makes me stronger"
Joined: Aug 2006
Posts: 714
Decorated_AS_Kicker
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Decorated_AS_Kicker
Joined: Aug 2006
Posts: 714
Tamaroo, I have been thinking of you lately, and wondering how you were doing, so it was really great to log on this morning and see an awesome post from you

I am so glad you have found a rheumy that will work for you instead of against you.

Looking forward to hearing more updates.

Rita

Joined: Mar 2002
Posts: 9,552
Likes: 10
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Joined: Mar 2002
Posts: 9,552
Likes: 10
Good to hear that the spirits are up Tammy. Hopefully you can work with the new rheumy to continue the improvement.

Tim


AS may win some battles, but I will win the war.

KONK - Keep ON Kicking
Joined: Nov 2001
Posts: 18,187
Likes: 7
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Nov 2001
Posts: 18,187
Likes: 7
Tammy, I am so glad to hear this. I hope the relationship continues in the same way or gets even better.

Many hugs,


Kat

A life lived in fear is a life half lived.
"Strictly Ballroom"

Joined: Oct 2001
Posts: 2,576
Likes: 5
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Joined: Oct 2001
Posts: 2,576
Likes: 5
Tammy,

Man, how BIZARRE! I had literally just finished reading Jaye's post about KA members listing good rheumy's here in the forum so everyone here could locate a good doctor more easily, and of course that made me think about your October appt. with Dr. Q. I was all set to go send you a PM to ask if you had gone yet, but decided at the last minute to finish scrolling down the forum. Imagine my surprise when I see your post talking about the very appt. I was about to send you a PM on!!!! What a coinky-dink!

Very glad to hear that the appointment went well. I have been thinking about you going to see her several times recently and having second thoughts about recommending her so strongly. Not because I have changed my opinion of her--definitely not! No, I was more worried that Dr. Q has a personal style that may not be to everyone's tastes, and I was suddenly worried that you were going to go to this visit with raised hopes based on my glowing recommendation, only to be disappointed. I can't tell you how happy I am to hear that my concern was exactly what I thought it was (when I stopped to think about it, that is)--a completely irrational worry brought about by nothing in particular.

I am glad to hear how well your appt. went, and that you do like her. It sounds as if she is being very thorough before she makes her final diagnosis, and that she also did a very good job of actually listening to what you had to say (one reason I liked her right away). I think it is obvious that she truly cares about her patients' well-being, and that kind of concern is worth its weight in gold. It is especially nice to hear that she agrees with you about that bony mass--I know that really bothered you.

I've had great success with Dr. Q lately myself. She put me on Cellcept to help with my recurrent--and increasingly severe--iritis and because she says she feels anyone on Remicade should be on MTX, Cellcept, or Imuran, although I know many others here have never heard of such a thing from their rheumy's, so I always wondered about this. I had never taken Remicade when she started me on Cellcept, but we agreed I should give it a try, since I had been feeling just horrible for about six months, maybe longer. I had already retired the Enbrel and tried Humira, but that didn't work at all for me and I went back on Enbrel while waiting to get approval for Remicade. Well, guess what? She told me that the Cellcept would take four to six weeks before I would feel any results, and lo and behold, after the fourth week, I suddenly realized that I felt GREAT. Not kind of good, not adequate (which is the best I usually hope for), but downright GREAT. We're talking "best I've felt in five years, as good as it gets, darn near pain-free when combined with my other meds" kind of GREAT, let me tell ya.

Well, needless to say, at first I held my breath and I didn't say anything to anyone, not even my mom, who helps me out with most of my medical stuff and can always tell from my voice how I am feeling (last part sounds just like a mom, doesn't it? ). Superstition crept in, and I didn't want to jinx things by telling anyone too quickly. But, after one whole week of feeling great, I couldn't resist anymore and let mom and dad both know about the sudden change in my status. They were thrilled, as was I. It's been three weeks since then, and nothing has changed, which I am just ecstatic about. I keep waiting for the other shoe to drop--aren't all AS patients conditioned that way?--but so far so good. In fact, when Dr. Q called me to discuss some bloodwork results (it was nothing, just my usual anemia that caught her eye), I told her what had been going on and we both agreed that "if it ain't broke, don't fix it," and that we would not rock the boat by switching to Remicade right now. If I start to feel rough again, then we can give that one a try. Until then, I'm very content to use Cellcept and Enbrel together.

Anyhow, I didn't mean to make the majority of this post about me instead of you, but I am just so happy to be feeling this good that I couldn't help it. Believe me, I am just as happy for you as I am for myself, since it sounds as if you are very happy with your first visit and are optimistic about what the future will hold if you keep seeing her. That makes me very, VERY happy for you Tammy.

Any chance you can pop over to Windsor on Saturday to meet our KA group for dinner? If you want some more details, you can pop over to the KA party forum, where you'll find lots of info. If you want to find out my plans, just PM me and I can send you my phone number. Would be great if you could make it--I think there are eight of us attending for sure as of right now, with a few more maybes out there too.

Once again, I am very happy to hear about your positive first visit Tammy, and I hope this is the start of a very good doctor-patient experience for you.

Brad


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